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Author Topic: This Week 7/13 In the AN World  (Read 5771 times)

LADavid

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This Week 7/13 In the AN World
« on: July 13, 2008, 09:38:31 am »
We have two events coming up this week.

First up, Sharon (Coffeylady) is having a Translab in Boston on Monday.  She's from Brookline NH, so I'm betting that she is headed to Boston today.  (Another New Englander -- are ANs contagious).

Best wishes Sharon.  Have a great surgery and a speedy recovery.  If you happen to see this, is there anyone who will update us?  My thoughts and prayers will be with you.

And finishing up the week, Jim Scott has his two year anniversary MRI on Friday.  Good luck, Jim.  May the MRI come back spottless.  I know you will let us know the outcome.

Have a great week everyone!

David
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

coffeylady

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Re: This Week 7/13 In the AN World
« Reply #1 on: July 13, 2008, 03:08:06 pm »
David

Thank you for Good Wishes  :D

My son has created a webpage on massgeneral.org/carepages so that everyone will have the same information at the same time.

I am headed to Boston on July 14th at 4:00AM - there will be no traffic and I expect smooth sailing at that time of day
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Debbi

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Re: This Week 7/13 In the AN World
« Reply #2 on: July 13, 2008, 05:01:21 pm »
Sharon -

All the best tomorrow - I'll check the website you provided to see how you are doing.  Lots of prayers coming your way!

Debbi, from the translab club...
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

ppearl214

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Re: This Week 7/13 In the AN World
« Reply #3 on: July 13, 2008, 07:19:18 pm »
Sharon,

As one New England-ah to anotha...... wellness wishes to you. You've got a FAB team at MGH and will be thinking of you tomorrow!


Jim.... pls keep us updated on the MRI! Fingers crossed for luck!

Heck, I think my appt is coming up too... will have to note on AN calendar... once I check my calendar at home.

Phyl

(thanks David for the thread!)
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sgerrard

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Re: This Week 7/13 In the AN World
« Reply #4 on: July 13, 2008, 07:21:46 pm »
Best wishes, Sharon.

Thanks for launching the weekly "on deck" post, David.

And I hope Jim gets a really dull and boring MRI.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

ppearl214

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Re: This Week 7/13 In the AN World
« Reply #5 on: July 13, 2008, 07:29:07 pm »
Quote from: sgerrard on July 13, 2008, 07:21:46 pm


And I hope Jim gets a really dull and boring MRI.

Steve

wouldn't that be nice? :)
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Syl

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Re: This Week 7/13 In the AN World
« Reply #6 on: July 14, 2008, 12:09:34 pm »
Sharon:
I'm praying for a positive outcome with your translab surgery this week.

Jim:
Congrats on your 2-year anniversary. I echo Steves words in hoping your MRI results are dull and boring.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

cmp

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Re: This Week 7/13 In the AN World
« Reply #7 on: July 14, 2008, 07:35:35 pm »
Sorry to be late to this thread...

Will be eagerly awaiting updates, Sharon--best wishes for a positive outcome and swift recovery!

Jim--can't wait for confirmation that those MRIs are pretty boring as films go...  :) (And congrats on the milestone!)

Carrie
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5 cm AN surgery, Shands Hospital, FL, Dr Albert Rhoton, 1988; VII-XII anastamosis for right-sided facial palsy 1989; diagnosed Feb 2008 w/ 1.8 cm recurrence; drs McKenna & Martuza; surgery rescheduled for 6/24/08!

leapyrtwins

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Re: This Week 7/13 In the AN World
« Reply #8 on: July 14, 2008, 09:11:54 pm »
Best wishes, Sharon.  I can't wait to see you back here as a postie.  And I'll definitely check out the link you gave us for updates.  Hope all goes well  :)

Jim - keeping my fingers crossed that you have a very uneventful MRI.  Please let us know when the results are in.

David - nice start in your new job  ;)  Thanks.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

MAlegant

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Re: This Week 7/13 In the AN World
« Reply #9 on: July 21, 2008, 01:59:08 pm »
I finally have a time...6am with a 7:15am start time. (University Hospitals Cleveland, Drs. Bambakidis and Megerian, NOT translab)
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.
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