Author Topic: facial numbness  (Read 5859 times)

marie

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Re: facial numbness
« Reply #15 on: July 25, 2008, 02:11:37 pm »
   My 1991 surgery left me with left-sided numbness.  They thought it might take a year to come back.  Seventeen years later I am still getting improvement.  It's almost imperceptable but I'm no longer biting my tongue and lip, and there are areas where I have a little feeling. 
surgeries : back of head 1967,1987
               translab 1991
               bone reduction 2002
               7/12  1968
               temporalis transplant  1969

Karen

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Re: facial numbness
« Reply #16 on: July 29, 2008, 06:57:07 pm »
I still have facial numbness after almot 5 years and it drives me crazy.  I hate the way it feels.  How do you deal wit h it?  Karen
Karen
     Surgery 12-17-03, nerve graft 1-04, 3.5 cm, facial paralysis, numbness and no hearing in left ear

MAlegant

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Re: facial numbness
« Reply #17 on: August 01, 2008, 06:23:44 pm »
I'm right there with you.  My tumor was wrapped around my trigeminal nerve and was pretty big (3x4cm) so the right side of my face is extremely numb.  I've got about a 50/50 chance of getting feeling back, and the doc said that what I have at 6 months is what I'll have.  After hearing stories of people improving after years and years, I am optimistic.  I have another follow-up on Tuesday with Dr. Megerian and I'll see what he has to say.  But I "feel" your pain.
M
« Last Edit: August 01, 2008, 07:30:55 pm by MAlegant »
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.