Author Topic: Eyelid surgery tomorrow  (Read 4283 times)

saralynn143

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Eyelid surgery tomorrow
« on: August 11, 2008, 09:26:13 pm »
I saw Dr. Custer at Washington University today. He thinks I have three basic choices (other than not doing anything). First is taking some stitches at either corner of my eye to make the exposed surface area smaller. The second is a weight implant, which he does. The third is an eyelid spring. He considers only a handful of surgeons nationwide are competent to do the eyelid springs, and even they have a 25% complication rate within the first year.

He does not think stitching would be optimal for me. I have no desire to go elsewhere for any more surgery, so we focused on weights. Dr. Custer uses platinum weights exclusively because there are fewer complications with reactions to the metal. I asked about platinum chains. He said he would order one if I was insistent, but he does not think the benefits outweigh the increased cost. He also thought the design would make it harder to remove later on because tissue would grow into the spaces of the links.

He has an opening in his surgical schedule tomorrow afternoon, so I am going back to have the procedure. He said I could expect to be sore for a couple of days, and black and blue for up to a month.

Risks are infection, shifting after insertion, and extrusion through the eyelid. He says I have thin skin so I will be at increased risk for extrusion, but he will place it as far down as possible to minimize the risk.

Nothing to eat or drink after midnight, so I'd better go down a tumbler of water. It is outpatient surgery and I will not be unconscious, but will be sedated.

I'll let you know how things go, probably Wednesday.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

sgerrard

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Re: Eyelid surgery tomorrow
« Reply #1 on: August 11, 2008, 11:35:21 pm »
Best wishes for you procedure, Sara, I hope it goes well.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

ppearl214

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Re: Eyelid surgery tomorrow
« Reply #2 on: August 12, 2008, 04:39:48 am »
Good luck Sara! Please keep us updated on how things go!

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

mimoore

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Re: Eyelid surgery tomorrow
« Reply #3 on: August 12, 2008, 08:03:54 am »
Good luck Sara. I will be thinking of you.
Keep us posted.
Michelle  ;)
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Kaybo

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Re: Eyelid surgery tomorrow
« Reply #4 on: August 12, 2008, 09:39:20 am »
Good Luck Sara!
I have NO FEELING on the AN side, but I have head several of these surgeries done and find them to be no problem.  Get you some bags of peas to freeze and rotate them out as ice bags - they fit the space of your eye better!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

LADavid

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Re: Eyelid surgery tomorrow
« Reply #5 on: August 12, 2008, 03:17:26 pm »
Good luck Sara.  I was two days away from the surgery when the opthamologist told me I didn't need it.  Keep us posted.

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

saralynn143

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Home again
« Reply #6 on: August 12, 2008, 07:39:48 pm »
I'm back home. Waited and waited and waited at the surgery center, then once we got in it took maybe ten minutes. I'm not black and blue yet but Dr. Custer promises I will be.

I'm really glad I took the opening today because the nurse says he usually has a 6 to 8 week waiting list.

I'm fading fast and think I will go get ready for bed.

Sara

P.S. David, congratulations on being able to avoid the surgery. I am nowhere near not needing it, and I can already tell I'm glad to have it.
« Last Edit: August 12, 2008, 07:45:06 pm by saralynn143 »
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Kaybo

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Re: Eyelid surgery tomorrow
« Reply #7 on: August 12, 2008, 07:57:52 pm »
Sara~
I think it was the single most wonderful I did to help simplify my life - hope you feel the same!  I bruised horrible (I'm a bruiser anyway) the 1st 2 times I had it and WANTED to bruise the next time b/c it was right at Halloween - wouldn't you know I hardly bruised at all? LOL!!!  Crazy...

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Debbi

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Re: Eyelid surgery tomorrow
« Reply #8 on: August 13, 2008, 09:21:40 am »
Sara-

So excited to hear about your weight!  Post more details when you can - and maybe a picture?

I am starting to develop sensitivity to the BlinkEze adhesive, so may end up getting a surgically implanted gold or platinum weight at some point if my eye still doesn't blink.  I'm very curious to know more about it, just in case...

Get lots of rest and enjoy your blink!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

saralynn143

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Re: Eyelid surgery tomorrow
« Reply #9 on: August 13, 2008, 09:54:20 am »
Debbi -- I e-mailed you some information that the MedDev customer service guy sent me when I was having problems with my BlinkEze. Let me know if you do not get it.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

mimoore

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Re: Eyelid surgery tomorrow
« Reply #10 on: August 13, 2008, 11:09:43 am »
Hi Sara,
I would love it, if you don't mind, if you would email me that as well...please.  Thanks. My Blinkeze has been a bit of a challange because of my heavy lids and the fact that my weight was not the right on but I am determined to try again. So any help would be totally awesome.
Thanks
Michelle ;D
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

saralynn143

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Re: Eyelid surgery tomorrow
« Reply #11 on: August 13, 2008, 11:27:01 am »
Michelle, your e-mail is hidden. If you will either e-mail me or give me your address in a private message I'll get that right out to you.

By the way, I am pretty sure MedDev will let you exchange your weight if it is the wrong size.
« Last Edit: August 13, 2008, 11:40:44 am by saralynn143 »
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

mimoore

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Re: Eyelid surgery tomorrow
« Reply #12 on: August 13, 2008, 11:45:23 am »
Thanks Sara, I emailed you my email address.
 ;D :D ;D :D ;D :D ;D :D :o :P
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.