Author Topic: Story Posted  (Read 1980 times)

Crystal

  • New Member
  • *
  • Posts: 47
Story Posted
« on: September 06, 2008, 08:12:21 pm »
Dear fellow ANer's.

As a tribute to this forum I have posted my story on my  blog at: http://www.aribfromeve.com//blog/?p=32.
Hoping it brings some help to those still going through the journey as well as recovering.
God bless this board for helping me get through the tough and scary times.
I know I will still be doing MRI's for quite some time.
Given I passed this last MRI one with flying colors, the doc's say I can go to an "every other year" schedule.
Some days I completely forget I went through this.
When my SS-deafness makes me uncomfortable in group situtuations, I always remind myself it could have been much much worse.
I always find comfort in knowing I can always come here for understanding when an unexpected side-effect sneaks a side-punch and things gets a little to much to handle.

Deepest regards,
Crystal
 
Dr. Chang - Stanford U - April 2004 Cyberknife 15mm X 12mm
Dr. Schwartz and Doctor Luxford - House Ear Clinic - Dec 2006 Translab 19.1mm X 15mm

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: Story Posted
« Reply #1 on: September 08, 2008, 09:01:05 am »
Thanks for the link - great story, Crystal!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7451
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: Story Posted
« Reply #2 on: September 08, 2008, 11:21:23 am »
Crystal,

I read the blog and honestly, I have to commend you... for your brutal honesty, for your step-by-step processes to help others understand your reality of your AN issues/situation.... for sharing so much of yourself.  Thank you for letting us know about it. It is a wonderful insight into all you endured.

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Crystal

  • New Member
  • *
  • Posts: 47
Re: Story Posted
« Reply #3 on: September 11, 2008, 06:33:06 pm »
my pleasure!
Dr. Chang - Stanford U - April 2004 Cyberknife 15mm X 12mm
Dr. Schwartz and Doctor Luxford - House Ear Clinic - Dec 2006 Translab 19.1mm X 15mm