CK 1 month followup

[shoegirl]

Hi! All,

I am not sure if I should post this here or in post treatment but I think newbies would benefit from it being in the radiation section of the forum.

Well, I am happy to say I had my 1 month followup appt. with my Neuro ENT and all is well!  Had my hearing tested today and there is no change so far.  Makes me very happy, as I would have been deaf in my AN ear had I had surgery(due to location of the tumor).  Hair loss is not bad and I feel really good.  Anxious for my first post-CK MRI.  Hopefully in March.

Keeping my fingers crossed!

Best Wishes! Suzanne

[Mark]

Suzanne,

That's great news! Sounds like everything has gotten off to a great start other than the hair loss part. Just as a caution from one who has been there, don't be surprised if you have some occassional symptoms over the upcoming months. Something like a quick episode of vertigo can happen over the first 6-12 months post treatment as the AN and nerves react to the radiation. 99% of the time anything of that type will be very brief and not that disruptive. I've talked to a number of people who got discouraged because they thought if nothing happened after the first few weeks , then nothing ever would. The reactions can happen over a period of time, if they occur, but are certainly much better than the usual recovery from surgery for sure.

Keep the great reports coming!   

Mark

[okiesandy]

Suzanne,

Good girl. I am so happy for you. Hair grows back. Hope the tumor doesn't.

I have finished my first week after CK and only have slight numb feeling on my cheek and a small bruise feeling on the left back of my head. Actualy tinnitus is better and balance is not better just changed. Nothing else. I am going to keep the positive and hope for the best. My Doctor told me there is never a way to tell what will happen. Some never have any symptoms and others go throught the list. Either way it does not mean failure or success, just symptoms or no symptoms.

Sandy

[Larry]

really pleased for you Suzanne,

It's always a buzz to hear good news and we need all the good news we can get.

It's these kind of stories that will push me towards either GK or CK. I would stay away from translab as much as possible especially as I am self employed and could not cope with a lengthy "down time" Look forward to future positive posts.

cheers


Larry