What is WONKY HEAD..........

[MaryBKAriz]

Hi,

I will hear more about it on the 18th. I hope to give you all a good update then. It is called gentomycin. It is used for Mennieres (sp?). I know there are different dosages. I just want to make sure it doesn't cause louder tinnitus, it bothers me enough already. I have a very discordant avante garde concerto in my head. 

Take care,

Mary

[Tamara]

Tammy, this is what I'm still experiencing.  I'm curious to hear how long this lastest for you, or is this something we just learn to live with.  My vision on my good side has become distorted since surgery.  My neuro said my good side shouldn't be doing this and advised me to see my optho if it doesn't resolve itself.  I'm going to give it eight weeks or so before I make an appt.

Great discription of "Wonky Head" by the way.  I'm writing it down to share with others.  Short and to the point. 

Cheri

Cheri,
  The Wonky Head lasted about 2 months, I'd say, but the intensity of the disorientation was decreasing during that time.  It's not like one day I had it and the next I didn't.  I still have it upon (rare) occasion, usually at night or if I turn suddenly.  I had poor vision in both eyes following surgery.  My AN side eye had no tears, so was always either blurry because it was dry or blurry because I'd just doused it with eye drops again.  My non AN side eye had poor vision for maybe 3 or 4 weeks after surgery - I don't know why, and neither did the opthamologist.  Hope your symptoms subside soon.  On the bright side, my eye now had proper tears again, and my vision is fine.  It's just such a S-L-O-W process!

Tam
 

[marguerite]

i've never heard of wonky head in re: to off balance but thought it was interesting at the baltimore support group last month a patient said he felt as though he's walking on a moving bus. Now that i can relate to!

[wcrimi]

Having one too many is a good analogy for wonky head.  I didn't have it for long, but to me it felt like things were out of proportion, and were distorted - sort of like if you photographed your life in snapshots about a second apart, and then put it together, instead of it rolling smoothly like a film.  The odd sensation of that happening sort of throws your balance off kilter.  So for me it was a vision/balance issue, not exclusively balance.

Tammy

This is exactly the way mine is. My surgeon described it as a problem with the coordination between between the eyes and remaining balance nerve.

[Sheryl]

Is "Wonky Head" a real medical term?  I've been doing medical transcription for over 40 years and have never run across it.  I do think Phyl coined the phrase originally and it stuck because it fits so well.  Maybe next time I get a dictation from a neuro doc about disorientation, etc., I'll change it from "the patient felt disoriented" to "the patient felt wonky headed" - LOL!!!
Sheryl

[wendysig]

Sheryl,
Capt. Deb said this phrase was actually coined by her and her late cousin .  She seemed quite sure he would get a kick out of it sticking and all of us using it.  If you really used wonky head in a report, I can only imagine the doc's face if he saw that  (the doc's fact == )

Still laughing,
Wendy

[Sheryl]

Hey Wendy - thanks for setting this "wonky head" straight and thanks to Capt. Deb for the initiation. 
Happy, Healthy New Year,
Sheryl