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Author Topic: Do you have Necrosis? If so, when?  (Read 2398 times)

mindyandy

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Do you have Necrosis? If so, when?
« on: December 30, 2008, 05:36:50 pm »
I had my 11 month MRI and the swelling has gone down.... ;D but no signs of darkening?
« Last Edit: January 02, 2009, 05:33:33 pm by Jim Scott »
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

mk

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Re: Do you have Necrosis? If so, when?
« Reply #1 on: December 30, 2008, 07:19:46 pm »
Darkening does not always happen. Many times it is observed at around 6 months, but disappears afterwards as scar tissue forms. Its absence doesn't mean that the procedure hasn't worked. So I wouldn't worry about it.

Marianna
« Last Edit: January 02, 2009, 05:33:03 pm by Jim Scott »
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

sgerrard

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Re: Do you have Necrosis? If so, when?
« Reply #2 on: December 31, 2008, 01:29:09 am »
None for me so far, at 15 months out. It can turn red and green for all I care, as long as it doesn't grow. :)

Steve
« Last Edit: January 02, 2009, 05:32:01 pm by Jim Scott »
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

mindyandy

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Re: Do you have Necrosis? If so, when?
« Reply #3 on: December 31, 2008, 09:53:45 am »
LOL red & green.... :D That would be interesting!!!
« Last Edit: January 02, 2009, 05:32:15 pm by Jim Scott »
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Jim Scott

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Re: Do you have Necrosis? If so, when?
« Reply #4 on: December 31, 2008, 02:21:31 pm »
Mindyandy:

I underwent surgery to reduce the size of my tumor and cut off it's blood supply, then went through 26 FSR treatments.  My doctor observed necrosis at 6 months and that has continued, as well as some slight tumor shrinkage.  However, as we're all different, I doubt there is a firm time-frame for observing necrosis.  As Steve stated, 'no growth' is just fine.  I agree and would just add that necrosis is even better - but not mandatory.  However, I'm sure it will happen eventually.   

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tumbleweed

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Re: Do you have Necrosis? If so, when?
« Reply #5 on: December 31, 2008, 03:28:08 pm »
Widespread necrosis seen in my 5-month MRI. :)

Best,
Tumbleweed
« Last Edit: January 02, 2009, 05:32:26 pm by Jim Scott »
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

mindyandy

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Re: Do you have Necrosis? If so, when?
« Reply #6 on: January 02, 2009, 09:56:49 am »
Opppps....I spelled so wrong....LOL

Wrong? Really? Your spelling looks fine to me. :)
« Last Edit: January 02, 2009, 05:34:57 pm by Jim Scott »
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

goinbatty

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Re: Do you have Necrosis? If so, when?
« Reply #7 on: January 05, 2009, 08:35:06 pm »
Small darkened area of necrosis in what appeared to be the center of the tumor on MRI at 7 months post CK. 
Sandra
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1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change

MLB57

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Re: Do you have Necrosis? If so, when?
« Reply #8 on: January 07, 2009, 02:00:07 pm »
Hi mindyandy,

Look on page 3 in this section for my post"The Big Black Hole in My Universe" to find some interesting comments about "necrosis"...

Regards, Mary (aka GrammyMary of the Maxwell Silverman's Brunch Bunch!!)    :-X
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1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!
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