New Blog

[Kaybo]

Brian~
I'm going to get to this blog - I REALLY want to read it - but I need more than a sec here & there to sit down & give it some time.  I didn't want you to think I didn't care!!

K

[Pooter]

*sniff*cry*sniff*  It's okay.  Really.. *sniff*cry*sniff*   

Brian

[Pooter]

Thanks, Cheri!  I'm glad you liked it.  Looking back on it now, there are things that I could change, but I think I'll leave it as is for now.  It's an imperfect story about an imperfect person going through an imperfect ordeal.  What can be better than that? 

Thanks again!

Brian

[saralynn143]

Over at the hemifacial spasm headquarters, members are encouraged to keep an MVD diary to help other HFS patients in their decision-making. Mine turned out very long and detailed because I wanted people to be informed about the complications I had. Complications are less common for HFS surgery than for ANA surgery, but they still happen. I also wanted people to get a feel for what they can do in Detroit, where I chose to have my surgery. I also put in a good word for this site, which is a great source of information for single sided deafness and facial paralyis, the two most common side effects for MVD surgeries.

I think the more information that is out there, the better. Good job, pooter!

Sara

[Pooter]

Thanks for the kind words Cheri and Sara.. So long as it's helpful for someone embarking on this wonderful journey (AHEM), then it's served it's purpose..  I am still contemplating adding to the blog, but not sure what to write.. I could tell everyone the intimate details of me scratching my nose, but that's not real fun.. Heh.  I'll figure something out.

Cheri, if it's any consolation, then many people go through those same emotions and are merely looking for help in the fog of those emotions and validation that those emotions are "normal".  Writing a story about your journey leaving in all of the emotional inpact could do just that for someone.  Again, just a thought. 

Regards,
Brian

[saralynn143]

There was a question posed on the HFS e-mail list from a person wanting information about acoustic neuromas, and in specific about finding a doctor, because her nephew had just been diagnosed. I was able to point her to this site.

If that is the only good that comes from my hanging around this site -- and believe me, it's not -- then it's reason enough.

Besides, I'm now an expert on TWO rare neurological disorders.

Sara

[Debbi]

Brillian, Brian!  And, yes, I agree with the suggestion of more pictures.  And, yes, please update from time to time.  I still update mine about weekly - I guess I look at it as sort of a journal or diary.  It's a nice place to talk through things, laugh, whine, whatever.  I've bookmarked yours and also added it to my blog as a link.  Hey, you're my surgery buddy after all!

Debbi