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Author Topic: My AN is Shrinking!!!  (Read 3333 times)

Nancy Drew

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My AN is Shrinking!!!
« on: February 13, 2009, 05:09:58 pm »
I had GK on Oct. 21, 2008.  Had a follow-up MRI on 1/29/09.  MRI indicated a slight decrease in size from 6.86 to 6.16.  Not a lot of shrinkage, but this is only a little over three months post GK.  Can't wait to see what happens when I have my next MRI in Oct., 2009.  No change in hearing (same as before GK), and no balance issues.  Postive news has helped me a lot mentally.  Just a waiting game, but it looks positive.  Thanks for everyone's support.   NANCY C. ;D ;D ;D
« Last Edit: February 14, 2009, 05:11:02 pm by Nancy Drew »
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12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

carter

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Re: My AN is Shrinking!!!
« Reply #1 on: February 13, 2009, 05:20:55 pm »
the fireworks are still going off around here ---  celebrating with you.  GOOD!!!!
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Diagnosed in fall of 2008 with 1.6 * 2.9cm AN on left side. 

Scheduled CK at Oklahoma Cyber Knife in December, 2008 and decided not to proceede on 2nd date that CK was scheduled.  I fired them.

CK performed at St John's Hospital (Tulsa)Jan 2009

Sue

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Re: My AN is Shrinking!!!
« Reply #2 on: February 13, 2009, 06:23:06 pm »
Yay, Nancy!   So happy for you.   :D :D

Sue in Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

nancyann

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Re: My AN is Shrinking!!!
« Reply #3 on: February 13, 2009, 07:25:09 pm »
Nancy:  It seems to me you are having 'quick shrinkage' ! ! ! ! !
Congratulations ! ! !   Continued healing my friend.

Always good thoughts,   Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Tisha

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Re: My AN is Shrinking!!!
« Reply #4 on: February 14, 2009, 02:57:15 am »
Wondeful news, Nancy.  Those are the kinds of things we love to hear.  Shrinkage, no matter how small, is the right direction.  Now go up and celebrate a great Valentine's Day today!

Tisha
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1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

Jim Scott

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Re: My AN is Shrinking!!!
« Reply #5 on: February 14, 2009, 01:52:12 pm »
Nancy: 

Congratulations on the good news!  With all the angst you endured before your radiation, I'm so pleased to learn you're not only enjoying a good recovery but now, rapid shrinkage of the tumor.  I trust this will continue.  Thanks for sharing your positive news.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

sher

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Re: My AN is Shrinking!!!
« Reply #6 on: February 15, 2009, 12:20:22 am »
Nancy,
Congratulations on your tumor shrinking. That is what we like to here. All things on track!!!!!
Sher
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1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

MAlegant

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Re: My AN is Shrinking!!!
« Reply #7 on: February 15, 2009, 08:40:13 am »
Congratulations Nancy!  May it continue to shrink...
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

LisaP

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Re: My AN is Shrinking!!!
« Reply #8 on: February 15, 2009, 06:04:52 pm »
congrats..........


LisaP ;D ;D ;D ;D ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

ppearl214

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Re: My AN is Shrinking!!!
« Reply #9 on: February 16, 2009, 07:39:13 am »
Hey Nancy,

Congrats on the news! As we know, the goal of radio-treatment is to stop the growth, not shrink it, but shrinkage definately works for me! :)  Great news... continued wellness wishes to you!

Hang tough!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

GRACE1

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Re: My AN is Shrinking!!!
« Reply #10 on: February 16, 2009, 08:13:13 am »
This is wonderful news.  And even better that there are no hearing or balance issues.  I am sure that the Oct 2009 MRI will give you even better news.

Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

Nancy Drew

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Re: My AN is Shrinking!!!
« Reply #11 on: February 16, 2009, 08:18:53 pm »
Thanks everyone for your kind responses.  Over the phone the doctor's office said my AN was "shrinking", but the official written report says:

CONCLUSION:  1.  VERY SLIGHT DECREASE IN THE SIZE OF THE LEFT INTERNAL AUDITORY CANAL ACOUSTIC SCHWANNOMA FROM 6.86 MM TO 6.16 MM.
                      2.  REMAINING MR SCAN IS NORMAL

Sounds good to me!!!!  However, they did find out that I had a sinus infection which maybe accounted for the weird sensations I was having in my head.  Took my last antibiotics today so hope the infection and weird sensations are out of there.

Nancy ;D ;D ;D
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12/05 AN diagnosed left ear 4.5mm
06/08 6mm
Gamma Knife 10/21/08
1 year MRI  6.8mm x 5.5mm
2 year MRI  5.9mm x 4.9mm
3 year MRI  6.5mm x 6.0mm 
Slight Hearing Loss Post GK

Swedish Gamma Knife Center
Englewood, CO
Dr. Robert Feehs

sgerrard

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Re: My AN is Shrinking!!!
« Reply #12 on: February 16, 2009, 08:35:01 pm »
Quote from: Nancy Drew on February 16, 2009, 08:18:53 pm
2. REMAINING MR SCAN IS NORMAL

I'm glad to hear that Mr. Scan is normal.  ;D

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.
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