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Author Topic: One small step for mAN.....  (Read 8806 times)

leapyrtwins

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Re: One small step for mAN.....
« Reply #15 on: February 16, 2009, 09:31:34 pm »
Lori -

you look fantabulous!

That's a cross between fantastic and fabulous  ;D

Many thanks for the terrific picture.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

yardtick

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Re: One small step for mAN.....
« Reply #16 on: February 16, 2009, 09:34:52 pm »
Lori,

You are beautiful inside and out.  We've know all along about your inner beauty and now we have a picture of your outer beauty!  

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

wendysig

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Re: One small step for mAN.....
« Reply #17 on: February 17, 2009, 12:06:42 am »
Quote from: yardtick on February 16, 2009, 09:34:52 pm
Lori,

You are beautiful inside and out.  We've know all along about your inner beauty and now we have a picture of your outer beauty! 



Lori,

I am so very happy for you -- you really look great and I like your hair too!

Ann Marie -  Very well said!

Hoping things just continue to get better and better and sending you many  hugs,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

cindyj

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Re: One small step for mAN.....
« Reply #18 on: February 17, 2009, 08:39:11 am »
Hey, Lori!  Wow, you look great.  So glad for you after all you've been through.  And, you do not look old enough to have a daughter already out of the house! 

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

lori67

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Re: One small step for mAN.....
« Reply #19 on: February 17, 2009, 10:20:51 am »
Well, here's my secret...the facial weakness cuts down on the amount of wrinkles - and Loreal takes care of the grey hair my kids have given me!   ;)

Oh, and the scratch under my eye is from being attacked by a tree while doing yard work!  Good thing I didn't poke my whole eye out! 

And Steve, just think how much better my hair would look with one of those snazzy knit hats.....

I showed my husband some of the posts last night and he said "but I've been telling you that you're beautiful".  He just doesn't get how that doesn't count!  I think he's afraid if he doesn't say that, I won't make him dinner anymore!   :D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

saralynn143

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Re: One small step for mAN.....
« Reply #20 on: February 17, 2009, 10:40:18 am »
Lori, I left a reply here earlier -- I truly did! -- but it's not gone so I probably hit the preview button instead of post or something equally squirrely.

I am so very happy that your nerve jump surgery was so successful. Your recovery seems to be ahead of the curve as well. Are you going to be a poster girl for your doctor?

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

saralynn143

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Re: One small step for mAN.....
« Reply #21 on: February 17, 2009, 10:43:33 am »
Ha, see I hit the right button that time.

I just wanted to add that it is wonderful that the nerve jump option is there for those whose facial nerve does not recover after surgery. When I woke up from surgery with facial paralysis I thought that was it forever. I was so relieved to find out that (1) the facial nerve can recover and (2) there are options if it doesn't.

Success stories are so important to give hope to the newly paralyzed.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

NancyMc

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Re: One small step for mAN.....
« Reply #22 on: February 17, 2009, 12:43:47 pm »
Lori,
Wish I looked that great, and I haven't had surgery yet . . . who knows if I ever will at this rate.  Hey, maybe I should go to LA and make a vacation of it!
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

arkansasfarmgirl

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Re: One small step for mAN.....
« Reply #23 on: February 17, 2009, 01:44:51 pm »
You look good!  I wouldn't have been able to tell which was your bad side if you hadn't told us.

Vonda
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jazzfunkanne

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Re: One small step for mAN.....
« Reply #24 on: February 17, 2009, 04:14:43 pm »
lori you look great
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over 4.5cm AN removed dec 06

leapyrtwins

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Re: One small step for mAN.....
« Reply #25 on: February 18, 2009, 08:15:16 am »
Quote from: lori67 on February 17, 2009, 10:20:51 am

I showed my husband some of the posts last night and he said "but I've been telling you that you're beautiful".  He just doesn't get how that doesn't count! 

Oh, I think this counts!  Sounds like James is a keeper.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

elderbirds

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Re: One small step for mAN.....
« Reply #26 on: February 23, 2009, 09:45:50 pm »
a little late here, but Lori you look great.  You are an inspiration to us all.   The nicest compliment I have received since the surgery was from a fellow ANer who said she couldn't wait to look like me (her surgery was 2 months after mine)  I turned around and said it to another person who was 6 months ahead of me!!    The encouragement is contagious!
Hope
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Debbi

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Re: One small step for mAN.....
« Reply #27 on: March 06, 2009, 09:05:44 pm »
Hi Lori-

How did I miss this post!!!??  You look totally beautiful!  Yep, your husband was right all along.  I will have to go over to facebook now and message you there just to say that I agree with Jan that you look Fantabulou!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

lori67

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Re: One small step for mAN.....
« Reply #28 on: March 07, 2009, 09:59:48 am »
Aw, you guys are so good for my ego!   ;D  Thank you so much - it really helps and means so much coming from people who understand.

Sara, I think I should be a poster girl for my doctor!  The very first time I saw him, the nurse told me I was his favorite patient, which was odd since I'd never met him.  I told her I hoped he felt that way after he met me!!  Turns out I was his favorite because I had none of the typical symptoms of an AN - no hearing loss, no dizziness, no tinnitus - just a numb face.  I guess he likes to have a unique patient every now and then.  If I had a dollar for every time I've been told I was a unique patient in the past 2 years, I think I could fix the economy all by myself!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.
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