Author Topic: Terrible headache  (Read 11865 times)

yardtick

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Re: Terrible headache
« Reply #15 on: February 22, 2009, 01:36:34 pm »
This is my third day :'( :'( :'( this week ???

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

cin605

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Re: Terrible headache
« Reply #16 on: March 07, 2009, 06:34:28 pm »
Iam on day 4 of massive headach.got so bad went to primary care on Thurs.MY booldpressure went up my temp down & i was sweating really bad.Not driven in a week balance & vision far off,My incision is swollen.arghh.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

catlover

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Re: Terrible headache
« Reply #17 on: March 07, 2009, 06:53:07 pm »
Hi,
Many years ago I also had migraines, but I'm convinced that it went away because I started to take fish oil pills. I take three a day at breakfast and my migraines haven't showed up since then. It probably took about 2-3 months until I noticed that the migraines showed up more and more seldom. Under a period of time I thought that the fish oil pills were too expensive to buy so I stopped, but after a few months the migraines returned and now I never think about stopping taking my pills.

Maybe this could be worth trying. The fish oil pills can't harm you anyway!  :)

Good luck!

Helene in Sweden
AN found in February, 2006, size 0,8 cm
Surgery 20th May, 2009, retrosigmoid approach
SSD and balance issues
Forever grateful to Dr Siesjo and Dr Kahlon, University Hospital of Lund, Sweden
Two AN:s found 1st March, 2016
Waiting for GK

Roger64

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Re: Terrible headache
« Reply #18 on: March 25, 2009, 06:55:24 pm »
I hate headache too. I get then daily still and I am on 2 migraine headaches med and two others headache med just to function on a daily bases. I am truly sick of it.  >:( I thank God everyday thou for my wife and kids and another day to spend with them.

Captain Deb

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Re: Terrible headache
« Reply #19 on: March 26, 2009, 11:51:19 am »
Roger,
Could you share with us what headache meds you are on, the doses and how often you take them? Were they prescribed by you surgeon, GP or what?  Just like to keep track of what others take for headaches.

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Roger64

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Re: Terrible headache
« Reply #20 on: March 29, 2009, 10:48:06 am »
Hi Deb,

Sure I'll share;

Frova 2.5mg for Migraine
Namenda 10mg
New one: Lyrica 75mg - for scare tissue pain
Dichloral Phen/Isomethep/APAP for Migraine as well. I take this one if I don't catch the onset of the migriane early.
Topiramate 25mg

I cannot seem to get the under control yet. I keep hoping soon they will be.

Roger

yardtick

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Re: Terrible headache
« Reply #21 on: March 29, 2009, 10:54:35 am »
I have been battling with a nasty headache since Friday evening.  Last night and early this morning was unbearable.  I couldn't sleep.  My face is also hurting pretty badly.   Oh well I see the neurologist April 7.  I hope she can help me  :'(

Anne Marie

PS Roger thanks for sharing your drug regiment.
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Roger64

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Re: Terrible headache
« Reply #22 on: March 29, 2009, 08:31:53 pm »
I have two day headache free! Yeah!!  ;D But, Ive been very tired and take two to three naps a day wheather I want too or not.  :(
I am not sure anymore whats the AN or the meds. Does, anyone else have this problem?

Also, I would like to ask how you deal with the headaches and work?

Roger

yardtick

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Re: Terrible headache
« Reply #23 on: March 29, 2009, 09:13:08 pm »
Hi Roger,

I live in Canada so our employment laws are a little bit different.  I have been off work on long term disability (LTD) for almost a year.  I did work for a good 18 months after surgery and it was very difficult.  The retired GM was very understanding, my fellow employees gave me a hard time.  I would go to work and everyone knew how much I was suffering.  Than the GM retired and along came this young buck in his mid 30's who had absolutely no compassion at all.  I almost had a nervous break down this time last year.  I went to my family doctor a complete mess, and he wrote me a note.  He had a lot of insurance papers to fill out, and I qualified for LTD.  My next step is to apply for Canada Pension Disability 6 months prior to my LTD runs out. 

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

ada tucker

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Re: Terrible headache
« Reply #24 on: March 31, 2009, 04:08:57 pm »
Hi, I'm Ada, living in Florida.  Had my surgery in NY 5 years ago.  Very lucky...Just lost all hearing in right ear.  Last year had BAHA implant with excellent results.  Highly recommed it.

I am very frustrated as most of us are.  Tired of complaining.  Some days I am great but others I wake up with this terrible pressure on my right temple shooting into my right eye.  The fatigue sets in and I must sleep with a heating pad for atleast 2 hours. ii can manage my vertigo most days.  But I continually have pressure from my cheek bone to the top on my head everyday.  I can only explain it to the doctors as the right side of my face and eye don't belong to me.  It is a strange feeling.  I have tried everything.  The last 2 months my right eye has started tearing.  A new MRI shows nothing, the Eye specialist sees nothing. Today they sent me for a Caroted artery test and an echo cardiogram.  They don't know what to do.  They are reaching.

Does anyone have similar symtoms.  I am tired on feeling this way.  I just want to start feeling better.  I think people are thinking I am making this up.  Thank goodness my Husband and children believe me.

HELP!


Roger64

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Re: Terrible headache
« Reply #25 on: April 02, 2009, 08:24:47 pm »
I missed my  medicine schedule up and now I have a killer headache. It all just so madding! 

yardtick

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Re: Terrible headache
« Reply #26 on: April 03, 2009, 09:02:01 am »
This has been a terrible week for me also.  All of the fast moving weather systems has played havoc on my head.  Tuesday I woke up not feeling well at all, my head was pounding.  I lasted until 4:00 in the afternoon and I had to go to bed.  I got up around 9:00 pm ate some scrambled eggs and was back to bed at 11:00 pm.  Slept through the night, thankfully.  Yesterday my head, felt like the novocaine was wearing off and aching dully.  Today my face is aching, from my cheek bone up behind my eye.  I've been experiencing really sharp stabs of intense pain above my ear and shooting into my brain. 

Everyone out there experiencing headaches and facial pain, tomorrow is another day!

Anne Marie

Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Joe Meehan

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Re: Terrible headache
« Reply #27 on: April 03, 2009, 11:08:37 am »
Ann Marie I've been pouring over the board for info and you definitely stand out. You have a great attitude despite a very difficult situation. I made up my mind no matter how bad it got there was going to be no pity parties or despair. Once you let that in you are in trouble. I don't know where you get the strength. Most mere mortals would have lost their mind by now. I hope someday you'll get to the bottom of this and life will be normal for you. I'm praying for you and others on the board.

This has been a tremendous resource for me. I thank all the people that have opened their lives up to us newbies so we can gain the info needed to treat our condition. I've been in the bushes reading & taking notes. I feel like I've come to know some of you and find myself pulling for you all. The stories detailing the symptoms, treatment options and drugs has been invaluable. I especially admire those who have gotten their challenges under control and continue to monitor and post replies for people who need help. I hope to do the same in return someday. I don't expect my surgeon to know it all. I'm going in Monday loaded for Bear w/treatment options drug options etc.

Knowledge reduces anxiety. Once I get the answers I need I'll feel much better about my journey. I know what you're going thru is tough. I'm pulling/praying for you. I know this board is an outlet and resource for you and others, thank God for the internet. I hope someday you'll figure all this out. Keep up the attitude you are an inspiration. Joe
Retromastoid Mass Gen 7/30/08 Drs. Barker & Gopen
2.5 x 3.4 12hrs completely removed. 100% facial palsy but facial nerve intact.
75% return of movement as of 8th month, removed eye ingot 3/09 good progress.
Deaf R side, tinnitus, balance problems, muscle spasms, muscle tension headaches daily.

yardtick

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Re: Terrible headache
« Reply #28 on: April 03, 2009, 12:13:05 pm »
Joe,

You have me blushing  ::)......I am a "mere mortal" my husband will attest to that!  Oh Joe I do have my pity parties, than I pick myself up and brush myself off.  I'm a lousy poker player, you can see every emotion on my face.  My husband can always tell when the storm is coming.  Louie has very broad shoulder for me to cry on and he has strong wonderful arms to hold and give me strength.  I have a good support system with Louie, our sons, friends and a few family members.  The forum has been amazing amout of strength for me. 

I thank you for your kind words.  I will be thinking of you on Monday. 

Anne Marie

PS You know Joe, my attitude has gotten me into a lot of trouble over the years.  Now my attitude is an inspiration!!  LOL.......I'd love for a certain gentleman GM to read your kind words ;)  Thank you OX
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Joe Meehan

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Re: Terrible headache
« Reply #29 on: April 03, 2009, 01:13:53 pm »
My not so silent partner who has a controlling 51% interest in our company has cut me no slack. I was told I would not be paid until I returned to work which was 5 weeks part time and then full time in six. God bless him he was bluffing he paid me anyway. But.....we grew at a paltry 1% last year after 40% the year before and you'd think his world was crumbling around us.

I went thru an ugly divorce the good year which spilled over into last year. I had a one month reprieve and then I got the diagnosis in April 30 days after my last court date w/the ex. Everyone around me was saying hey you're at rock bottom its only up from here after the divorce. Well no........ it can get worse.......... much worse and boy did it. So the point is, my not so silent partner is pissing and moaning about 1% growth while I'm going through all this. In his eyes there was no excuse. Bottom line, business is motivated by self interest. There is no sympathy whatsoever. If you're dragging down the ship you're history. Survival of the fittest. My attitude was so my numbers slipped but I'm the one who got you here in the first place. That didn't matter one bit. There was no long term vision no goodwill accumulated only............. what have you done for me lately. I was shocked at the indifference. There were no warm fuzzies coming my way and I was totally taken aback. 

Well I'm back in the saddle and ramping up those long hours and building it like my life/job depended on it. Yet I get an earful that Jan and Feb's numbers were way down. Da we're in a recession hello!!! Well we made up for a lot of it in March so I hope we are trending upward once again but we shall see.

Anyway the only ones who really care are your family and friends. Business is a cold hearted dog eat dog culture. I guess its all about the bottom line which was hard to swallow. I thought hey these are my friends certainly they'll cut me some slack? The only slack I'm getting is in the rope they're giving me to hang myself. My outlook has totally changed and maybe it did need a wake up call. I'm working hard because I'm feeling well enough to. If I felt like you do I'd be gone in a NY minute. That’s the harsh reality.....it sucks.

You are entitled to pity parties with what you are going through.... we all have them. I'm glad you have a great support system so do I. My friends and family have been unbelievable. One of the things I did was reach out and ask for help which made a huge difference. Most want to help but don't know what to do. I clarified it for them and they came thru when I needed the most. Hang in there I’ll pray you find some peace.

You are an inspiration whether you know it or not to us and I'm sure the people around you. We have an idea of what you are going through and you are a trooper. Joe
Retromastoid Mass Gen 7/30/08 Drs. Barker & Gopen
2.5 x 3.4 12hrs completely removed. 100% facial palsy but facial nerve intact.
75% return of movement as of 8th month, removed eye ingot 3/09 good progress.
Deaf R side, tinnitus, balance problems, muscle spasms, muscle tension headaches daily.