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Author Topic: This Week (4/05/09) in the World of the Misdemeanant AN  (Read 5139 times)

wendysig

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #15 on: April 07, 2009, 05:26:00 pm »
Wishing allof you who are having or have had surgery this week great surgical outcomes.  To those having MRIs -  Hoping they are clear adn unremarkable.  Happy Birthday Molly!

David -  Thanks again for doing such a wonderful job!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Cheryl R

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #16 on: April 08, 2009, 08:13:58 pm »
I can breathe a sigh of relief as my spending  almost an hour and  half in a very closed MRI for the brain and spinal tumors showed no spinal ones and no new ANs today.          I have had the MRIs in the past at where I was working and only one at Univ of Iowa immed part surgery in 2001.           My previous ones has a mirror where you could see out and also a cord to call them.   Todays new location had neither.        Plus they would not put ina lock ahead of time in a vein and it took 2 sticks to get the contrast in.         
I was very nervous this week since I do have more to lose in the future if have a new one on the side where the hearing improved.     My speech discrimanation was even now 96.      Trying to get across to my surgeon that it is a big difference in the room with that guy speaking in your ear and from out in public.                           So now am in a much better mood and just tired tonight!            I do not have to go back for a year!
                                                             Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Kaybo

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #17 on: April 08, 2009, 08:46:05 pm »
So glad that is over for yo Cheryl! Deep sigh...

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

stoneaxe

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #18 on: April 08, 2009, 09:32:09 pm »
Hoping everyone has great outcomes/news this week. You must be so relieved Cheryl...I'm nervous about my MRI tomorrow and I don't have anything nearly as nerve wracking as you must go through every time to worry about. If I had to worry about a new one cropping up each time i think I'd go crazy. I am fortunate that I don't mind going into the MRI's. I've actually fallen asleep once... ;D
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

sgerrard

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #19 on: April 08, 2009, 10:44:23 pm »
Cheryl, I am very happy for you. Unremarkable MRIs have a special significance for you. No new ones is very good news!

Did your speech test include listening to a recording of that guy who says "you will say farm" ? It is nothing at all like real listening.

I must say, we have had 3 reports of successful surgery so far this week, plus a long awaited update on Liz from last week. I think we should take David up on his recommendation, and all take tomorrow off and do the Hokey Pokey.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

chocolatetruffle

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #20 on: April 08, 2009, 10:56:10 pm »
david, WOOHOO on your first time kayaking as postie!!!!! wow, the world just cracked open for you, i wonder what is next???  ;D

and to Jo, DLM4me, Nancy, and Stormy, Scarlett - wishing you great results and good luck!!!
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chocolatetruffle


2.8 cm left AN
Translab @ House/St Vincent's 11/27/07
Drs. Brackmann, Schwartz, Wilkinson, Stefan

Cheryl R

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #21 on: April 09, 2009, 08:59:57 am »
I was so tired that I slept in this am which I don't usually do.        This was the first time to have had   the pre MRI be such a worry time since April 17th is the 1 yr anniv of the left sided surgery and get the hearing to return and no cochlear implant needed.
Yes the audiogram included that wonderful guy who said,you will say farm,you will say have,etc.             Where is he out in the real world?      I could hear even better if he was around.     
            Now back to real life!                             Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

joebloggs

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #22 on: April 09, 2009, 05:44:17 pm »
I'm so happy for you Cheryl, fantastic MRI results! Yipee!!!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

sgerrard

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #23 on: April 10, 2009, 11:10:36 pm »
Any word about Stormy? We need to wrap this good week up...

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Rich56

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Re: This Week (4/05/09) in the World of the Misdemeanant AN
« Reply #24 on: April 11, 2009, 10:33:20 am »
Quote from: sgerrard on April 10, 2009, 11:10:36 pm
Any word about Stormy? We need to wrap this good week up...

Steve

We've been wondering the same thing.  Hope all is well.

We'll continue to keep Stormy in our thoughts and prayers for good news,

Rich & Scarlett
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments
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