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Author Topic: OMG I made it  (Read 2902 times)

cjtender

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OMG I made it
« on: May 03, 2009, 04:09:34 pm »
Bad bad times that I hope to forget soon....the first 28 hours of constant pain and nausea and the next 4 days just trying to get some of my senses back again.  I am back to the in laws today and my follow up is in a week.  A little rough with  the road conditions getting out of NYC today but we made it.  So happy to see my 2 year old daughter.  Talk to you all soon
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Patty  34 , RN ,  Dx with 3x2cm (plum grape) size AN on 3/6/2009 and ALL  removed-- retosigmoid on 4/28/09 with Selesnick/Gutin at SLoan Kettering in NYC

CHD63

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Re: OMG I made it
« Reply #1 on: May 03, 2009, 05:50:33 pm »
Hang in there ..... you should soon begin to rapidly feel better.  The first week after any kind of major surgery is rough.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Dog Lover

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Re: OMG I made it
« Reply #2 on: May 03, 2009, 06:05:49 pm »
It DOES get better. The first week is the worse. Get lots of rest and take your walks when you can. You're through the worst.

Cathy
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Cathy
9mm x 3mm Left Side AN
Mid Fossa Aug. 21, 2008
Dr. Gantz / Dr. Woodson
Univ. of Iowa Hospitals and Clinics
No facial issues, hearing saved, I keep active and feel back to normal.

Kathy M

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Re: OMG I made it
« Reply #3 on: May 03, 2009, 06:13:26 pm »
Glad you've made it past the first few days....  Being back with your daughter will be the best medicine!!!  Don't take things too quickly, rest when you can, and be patient with yourself.  It gets nothing but better with time.   Take good care!

Kathy
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AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

leapyrtwins

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Re: OMG I made it
« Reply #4 on: May 03, 2009, 06:21:38 pm »
Patty -

glad to have you back  ;D

As others have said, the first couple of days are generally the worst.  Now that you are home you should made progress every day.  Sometimes the progress will be extremely slow, and some days you might have setbacks, but don't lose heart.  You've been through a major surgery and it takes time to recover, but you'll get there.

Get lots of rest,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kate B

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Re: OMG I made it
« Reply #5 on: May 03, 2009, 07:27:20 pm »
Hi Patty,

Your subject line says it all...you made it.  You've come through a rough five days. Each day you will be able to notice more and more progress.   Glad you have help.

I can only imagine the happy reunion between you and your two year old.

Kate
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Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

NancyMc

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Re: OMG I made it
« Reply #6 on: May 04, 2009, 02:33:29 am »
Patty,
Glad that's behind you and that they got it all.  Let us know how you progress in your recovery.
Wishing you wellness,
NancyMc
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

suboo73

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Re: OMG I made it
« Reply #7 on: May 04, 2009, 03:48:08 am »
Hi Patty!  Glad to see you are back and now you are a postie!

I remember thinking some similar thoughts (although not like having brain surgery!) after my first C-Section...
Sounds like you are thru the worst of it!

My thoughts and prayers are with you for a speedy recovery.
Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

wendysig

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Re: OMG I made it
« Reply #8 on: May 04, 2009, 05:53:02 am »
Patty -
Glad to  hear you aren the road to recovery.  Baby steps -- and the AN recovery is a lesson in patience.  Rest and recover at your own pace.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Jim Scott

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Re: OMG I made it
« Reply #9 on: May 04, 2009, 03:48:25 pm »
Hi, Patty ~

Welcome back, 'postie'!  From this point on, every day will probably be a little bit better.  Soon, this will all be a memory - and little more.  Rest, stay positive - and stay in touch.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

EJTampa

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Re: OMG I made it
« Reply #10 on: May 05, 2009, 02:14:57 pm »
Patty,
 
Sorry to hear about the bad, bad times...but it's great to have you back!  The worst is behind you now and you have much to look forward to!  Keep us updated on your progress and I will pray for your continued recovery!

 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.
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