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Author Topic: The week ahead....UPDATE  (Read 1720 times)

Jwh

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The week ahead....UPDATE
« on: May 04, 2009, 07:04:43 am »
So my stomach is in knots as I write this!  Tomorrow I have a hearing test to see what is going on with my "good" ear.  I've had some issues with it since my surgery.  Thursday is my post surgery 3 month MRI.  I'm meeting with the surgeon right after to get the results.  Yikes!  I need to put this chapter of my life to rest once and for all! 

Jen
« Last Edit: May 05, 2009, 02:42:32 pm by Jwh »
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Kaybo

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Re: The week ahead....
« Reply #1 on: May 04, 2009, 07:07:46 am »
Jen~
Hope all goes well for you...I am saying a prayer right now for you to feel PEACE about this whole week and what is in store for you!!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
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SSD
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T3-3/08
Great life!

leapyrtwins

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Re: The week ahead....
« Reply #2 on: May 04, 2009, 07:10:11 am »
Jen -

keeping my fingers crossed that all goes well.

Good luck  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Keri

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Re: The week ahead....
« Reply #3 on: May 04, 2009, 01:48:47 pm »
Hi Jen,
I can't believe we're at three months. I don't have a follow up until 1 year. I hope all goes well - I'm glad you can get both appts over with tomorrow and hope you find out everything soon and it's all good. Like Kay, I'll pray for peace for you too.
Take care,
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Jim Scott

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Re: The week ahead....
« Reply #4 on: May 04, 2009, 03:36:53 pm »
Keri ~

My best to you as you deal with this situation.  May you have a good report on your 'working' ear and, of course, a perfectly normal MRI.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

28Lisa

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Re: The week ahead....
« Reply #5 on: May 04, 2009, 03:52:32 pm »
Wishing you all the best!

Lisa
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A.N. 4+cm, 9/11/07 @ NY Presbyterian Hospital, Dr. Phillip Stieg
post opt - partial facial paralysis on left side, total hear loss on left side, speech altered, loss of taste, smell,balance, loss of sensation on right side from shoulder down, low motor skills, eye weight 11/07

Jwh

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Re: The week ahead....
« Reply #6 on: May 04, 2009, 04:44:40 pm »
Thanks all  ;D  I feel better already heading into tomorrow!  I'll be sure to update everyone.

Jen
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

wendysig

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Re: The week ahead....
« Reply #7 on: May 04, 2009, 09:53:04 pm »
Jen,

Good luck tomorrow Ihope all goes well and look forward to seeing your update.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

tatianne

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Re: The week ahead....
« Reply #8 on: May 05, 2009, 04:16:05 am »
Prayers are with you Jen....may all your results will only positive and encouraging.
Pls let us know what happens..praying for you
T
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Waith and Watcher
July 2006 8mm
Jan 2007 9.5 mm
Jan 2009 1.4 cmm x 5mm
GK surgery completed on May 4, 2009 in Sherbrook Quebec, hoping and praying this will be the beginning of the end of my AN......

Lilan

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Re: The week ahead....
« Reply #9 on: May 05, 2009, 05:40:56 am »
Great wishes for good news!
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Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

Jwh

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Re: The week ahead....UPDATE
« Reply #10 on: May 05, 2009, 02:49:54 pm »
First hurdle done! 

My hearing test revealed the following: 

Good ear in normal limits - great news for me considering I've been having some issues with it since my surgery.  They said two frequencies were on the low end of normal but still considered normal ( could be muffled from cold, allergies, etc).

AN ear - profound hearing loss.  Although I was hearing some low frequencies when the volume was high!  Humm, that strange I could hear things in that ear!  Considering I had Translab I didn't think that was possible.

Next hurdle on Thursday with my MRI and results.

Everyone thank you for your good thoughts and prayers please keep them coming ;)

Jennifer
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

ppearl214

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Re: The week ahead....UPDATE
« Reply #11 on: May 05, 2009, 03:12:18 pm »
Jen

I desperately try to keep up with everyone and what is going on. I'm sorry I am late on this one. I'm thrilled that the hearing test went ok. :)  Keeping fingers crossed for the MRI this week and let's keep you well! :)  I know the To'G (Tube o' Gloom ie: MRI) isn't fun, but..... I have faith.

Hang in there! Will look for further updates.
Phyl

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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Jim Scott

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Re: The week ahead....UPDATE
« Reply #12 on: May 05, 2009, 03:33:18 pm »
Jennifer ~

Thanks for the update, which is mostly positive.  I'm happy to see that.  :)  The MRI is a chore and everyone has some level of anxiety as they approach it, but, as you know, many are praying for you.  I look forward to another positive (no problems) post following your MRI on Thursday.  Stay strong.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: The week ahead....UPDATE
« Reply #13 on: May 05, 2009, 10:07:37 pm »
Jen -

glad the hearing test was so positive.  Good luck with your MRI.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: The week ahead....UPDATE
« Reply #14 on: May 07, 2009, 06:44:36 am »
Jen d- 

Ihope the  MRI results are more good news.

Wendy
Logged
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!
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