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Author Topic: This is it!  (Read 4517 times)

Helga

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This is it!
« on: July 12, 2009, 05:02:32 pm »
It's Sunday evening, tomorrow I am heading to Boston, check in 6 am Tuesday morning at Tufts. Had a rollercoaster weekend  :-\ (oh no, I made the wrong decision), feel quite calm and ready now. I set up a webpage at the same website that Allegro/Laura did, for anyone interested following my progress: the website is "thestatus.com", click on "visit a patient page" then sign on my name "Lacroix" and password "sauerkraut1" (I am sure you all know that a grumpy German is a sauer kraut?). My sweetie will hopefully be able to update the page until I am ready to jump in. So long, see you on the other side, thanks for all the support,  ;)
Helga (hlmsrd)
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msmaggie

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Re: This is it!
« Reply #1 on: July 12, 2009, 05:15:33 pm »
Good luck w/your treatment!  You will be glad to be on the other side of this thing.  Just coast for 2-3 days, and then see if you are up to walking, bathing, etc.  Keep us posted....soon-to-be postie! :D

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

LisaP

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Re: This is it!
« Reply #2 on: July 12, 2009, 05:25:32 pm »
Helga,

Best of luck to you, keep us posted.

You will be in my thoughts and prayers.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

CHD63

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Re: This is it!
« Reply #3 on: July 12, 2009, 07:09:50 pm »
Helga .....

My thoughts and prayers for an uncomplicated, successful surgery.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

NancyMc

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  • One year and all is well, almost.
Re: This is it!
« Reply #4 on: July 12, 2009, 07:10:40 pm »
Seems like yesterday we were at the brunch meeting for the first time, . . . you all indecisive.  You've come a long way, Baby!
You'll be outa there in no time.
We'll be checking up on you, so behave yourself.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

wcrimi

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Re: This is it!
« Reply #5 on: July 12, 2009, 09:49:48 pm »
Best of luck.
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

leapyrtwins

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Re: This is it!
« Reply #6 on: July 12, 2009, 09:58:16 pm »
Good luck, Helga.

We'll be anxiously awaiting the updates from your sweetie!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Helga

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Re: This is it!
« Reply #7 on: July 13, 2009, 06:42:10 am »
Thanks to all of you! It means so much to have the good thoughts of people who knwo what it's like and have been there/are there. Off to Boston.
Helga
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Dan

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Re: This is it!
« Reply #8 on: July 15, 2009, 12:27:55 am »
Helga,
viel Glück und gute Besserung.

LG Dan in Germany
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US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany
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