Hi Helen,
"wonky head" is a term coined here by a user, Captn Deb (you may see the pirate talk around here... she's our fearless leader on our own ANA forum Pirate ship, the "PBW"). Anyway, quite a while back, Deb came up with the term as many of us have had similar description in how our heads on occassion get dizzy but also have a "disconnect" feel (much like taking cold medicines). So, what everyone here has noted does fall in line with "wonky head" but there is (to my knowledge) no medical terminology for it (although, my neuro-onc, did tell me one day a medical term for it, but not sure it applies.. and can't remember what he told me).
Hope that helps.
Back to topic: I spoke on the phone to hevreh last night... he just stopped taking the "Decacrap" (decadron) which totally wiped him (ie: insomnia, etc). He sounded good and did well with the CK... so, now he's an official "toastie postie" and sending wellness wishes his way!
Phyl
