Author Topic: INTERESTING ARTICLE  (Read 2828 times)

LOIS

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INTERESTING ARTICLE
« on: September 12, 2009, 07:04:58 pm »
I found this on MSN Health and thought you might be interested in it. Click this link: http://health.msn.com/health-topics/ears-nose-throat/articlepage.aspx?cp-documentid=100244938
« Last Edit: September 13, 2009, 03:53:31 pm by Jim Scott »
Diagnosed 07/08   1.2 x 1.1 cm. left AN Retosigmoid surgery 08/08 with Dr. Bartels  @ Tampa General Hospital

Darin

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    • The Running Tumor
Re: INTERESTING ARCTICLE
« Reply #1 on: September 12, 2009, 07:49:42 pm »
That is a fascinating article! Thanks for posting the link.
3cm AN on right side
Surgery July 1st, 2009
C'mon facial nerve, you can do it!

lori67

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Re: INTERESTING ARCTICLE
« Reply #2 on: September 12, 2009, 08:15:31 pm »
That's amazing!  Finally, some hope for NF2-ers!

Thanks Lois!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

4cm in Pacific Northwest

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Re: INTERESTING ARCTICLE
« Reply #3 on: September 12, 2009, 09:11:43 pm »
Hey we have the same discussion going on over here ...
http://anausa.org/forum/index.php?topic=10502.0

Over in  the "AN Community " section

Too funny   :)

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Jim Scott

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Re: INTERESTING ARCTICLE
« Reply #4 on: September 13, 2009, 03:23:56 pm »
Lois ~

The linked article contains some very relevant AN treatment information regarding the tumor fighting drug, Avastin®.   Wide distribution is helpful.  Thanks for posting it.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tumbleweed

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Re: INTERESTING ARTICLE
« Reply #5 on: September 13, 2009, 10:41:09 pm »
Thanks for posting this link, Lois. What I find fascinating is that Avastin apparently restored hearing in many of the patients. Although the article didn't detail how long ago before receiving treatment the patients had lost their hearing, the inference was that it wasn't acute loss but chronic. That would seem to indicate that the hearing nerve may not be irreversibly damaged by an AN in some cases and the shrinking of the tumor was related to the restoration of hearing.

I'd been aware of anti-angiogenesis drugs, or those that inhibit the formation of new blood vessels caused by VEGF and other factors. I even tried some natural anti-angiogenesis supplements while I was in watch-and-wait, although these turned out to be completely ineffective. But what really gets my attention is the reversal of hearing loss effected by taking Avastin. Would love to learn more.

Best wishes,
Tumbleweed
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08