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Author Topic: No Growth  (Read 4536 times)

TJ

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No Growth
« on: September 25, 2009, 09:42:16 am »

Well for all those in the "watch and wait" status, I am still here.  As mentioned in other posts, I just want to get rid of it, but now is not the right time  I went for my one year MRI and the good news is that the AN has not grown.  I understand many of you have been in this mode for several years, which is good to know.  The MRI also found an enlarged jugular bulb on the left side.  The doctor is referring me to another specialist as he said that it may be pressing on the nerve which may have caused the sudden hearing loss and now the severe tinnitus.  My AN is on the right and was found accidentally.

One thing for sure as all know this is a crazy adventure

TJ
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Jackie

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Re: No Growth
« Reply #1 on: September 25, 2009, 10:32:06 am »
Hi TJ,

So happy for good news of no growth for your AN. We love to hear that especially those of us that are W and W. Congratulations! One thing about all this advanced technology, they do find things sometimes even though they aren't looking for them! See my signature line.

Take care and continues good news!!!
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Jim Scott

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Re: No Growth
« Reply #2 on: September 25, 2009, 11:29:33 am »
Hi, TJ ~ and thanks for posting your encouraging (no growth) one-year MRI report.  The 'jugular bulb' that was discovered via the new MRI scan may well be the cause of your tinnitus and hearing loss.  I trust that it can be effectively dealt with by the specialist you'll be seeing.  I think we can agree that the AN experience is, indeed, a crazy adventure.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Vivian B.

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Re: No Growth
« Reply #3 on: September 25, 2009, 12:00:59 pm »
Hi TJ,

Good news. I am glad for you. I had my first 6 month MRI last week. I will have the results on Tuesday. We will see!

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Mickey

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Re: No Growth
« Reply #4 on: September 25, 2009, 05:55:36 pm »
Glad to hear about the no growth! Best wishes, Mickey
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leapyrtwins

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Re: No Growth
« Reply #5 on: September 25, 2009, 09:26:52 pm »
No growth is a good thing.

Congrats, TJ

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Patti UT

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Re: No Growth
« Reply #6 on: September 26, 2009, 01:55:49 pm »
It is amazing what they can find these days.  I tore the tendon in my wrist from one of my many falls (thanks AN balance issues) and when they did an MRI of my wrist to check for a tear they discovered 2 grape size cysts in my hand and wirst  bones.  They look daunting but the docs said they are fairly common and nothing to worry about.  Of course they wanted to do surgery to fix the tear, but on no,  not me, I'm not having ANY more surgery I told them and have been dealing with it with a wirst brace. Of course that was before I was diagnosed with AN #2.  Now looks like surgery is inevitable. 
  I keep thinking I'd like to go in and have them fix the wrist, the knees, the AN all at once. AN hey while they are at it, how 'bout a little tuck here and there  ;D.  Heck, how 'bout a whole body replacement, I'll take the 20 yr old version thank you very much :D

Patti UT
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2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

CHD63

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Re: No Growth
« Reply #7 on: September 26, 2009, 02:54:05 pm »
First of all TJ, glad to know your AN has not grown.  Hopefully the other issue will be taken care of soon.

Patti, I often feel like life is just a series of patches at my age.  As long as they have good patches, it will keep me going.  So far I have had good patches!   :o

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

ppearl214

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Re: No Growth
« Reply #8 on: September 28, 2009, 05:52:13 am »
TJ

The thought of no growth certainly works for me.

Yesterday, was at the local ANA support group meeting... the woman that currently leads the group was in W/W 8 yrs before doing anything..... so, it's ok.  Here's wishes that the stinker continues to stay as it (in lack of growth) and that you are doing well.

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

TJ

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  • 1.2 cm AN right side, CK November 2010
Re: No Growth
« Reply #9 on: October 02, 2009, 01:59:38 pm »
Thanks for all of the good wishes.  I went to another specialist to see if  the jugular bulb was pressing on the nerve  in my left ear.  The AN is on the right side.  The nerve is not being pressed on, so we continue down the path to try and find out why I lost my hearing in the left ear.  Thanks again all.

TJ
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