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Author Topic: Slowly but surely  (Read 4969 times)

stoneaxe

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Slowly but surely
« on: October 28, 2009, 08:17:34 am »
My face has slowly been recovering tone for awhile now but I still had no movement. Now I just noticed in the Apple Dumpling Gang picture that it looked like my smile was more symetrical....I just went to the mirror and was very surprised to see my lip and cheek move....  :) :D ;D :o. It feels weak but I'm very pleased.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

lori67

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Re: Slowly but surely
« Reply #1 on: October 28, 2009, 08:35:33 am »
Ah, those first tiny movements!  What a good feeling!  I hope you're smiling like this guy  ;D very soon!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

nancyann

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Re: Slowly but surely
« Reply #2 on: October 28, 2009, 10:41:45 am »
Bob:  I saw your picture from the brunch - I had forgotten you HAD paralysis - you looked AMAZING ! !
Great news ! !  Continued healing, Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

tenai98

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Re: Slowly but surely
« Reply #3 on: October 28, 2009, 10:50:14 am »
 ;D  ;D  ;D  ;D all the way
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

saralynn143

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Re: Slowly but surely
« Reply #4 on: October 28, 2009, 11:18:58 am »
This news makes me happy. Way to heal, Bob!

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Jim Scott

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Re: Slowly but surely
« Reply #5 on: October 28, 2009, 12:22:05 pm »
Congratulations, Bob!  Your smile looked pretty symmetrical to me - and I was only a few feet away from you during the brunch.  Things can only get better!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

moe

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Re: Slowly but surely
« Reply #6 on: October 28, 2009, 12:26:29 pm »
Cool, Bob, what great news.
Keep practicing your smiles ;D ;D
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

opp2

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Re: Slowly but surely
« Reply #7 on: October 28, 2009, 05:55:19 pm »
Hey Bob, I too saw your pictures and I thought you look fabulous. Keep it up!

Nikki
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

leapyrtwins

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Re: Slowly but surely
« Reply #8 on: October 29, 2009, 07:39:05 am »
Slow and steady wins the race.  Patience is generally one of the keys in AN recovery post op.

You're doing well.

Chin up, Bob   ;D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

stoneaxe

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Re: Slowly but surely
« Reply #9 on: October 30, 2009, 07:31:37 pm »
Thanks all!

Chin up...and all the rest too.... ;D
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

mimoore

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Re: Slowly but surely
« Reply #10 on: October 31, 2009, 04:33:24 pm »
Oh what wonderful news! The small things in life that make us happy.
Here's to more movement coming your way!
Michelle
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Debbi

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Re: Slowly but surely
« Reply #11 on: November 02, 2009, 04:27:54 pm »
Hey Bob-

I think I speak for all of us who've had "facial irregularities" when I say - Yippee!! Yahoo!! Good News!!    :D ;) ;D

Thanks for taking time to share the good news.

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com
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