Hello everyone,
I have now completed my consultations with radiation oncologist and ENT and I am happy to report that at 18 months post-GK everything is stable. The AN remains unchanged. No shrinkage, but no growth either. The darkening that we saw at 6 and 12 months is beginning to disappear. The radiation oncologist said that this may be an indication that "things are settling down", whatever that means. He said that we should stick with the 6 month MRI schedule for now.
The hearing test was exactly the same as the one that I had right after GK. That is, some hearing loss (30-40 PTA) in the lower frequencies, and normal at the higher frequencies, as well as perfect word recognition. ENT was optimistic that since there is no change in so many months, there is a big likelihood that "it may stay like this for years".
I still have the numbness, accompanied by dry eye, which I know that will likely be there for ever, but I consider this a very minor problem. I haven't had any new symptoms and my energy levels are higher than they have been in more than a decade. I feel very fortunate and grateful, that up to now things have worked so well.
I also think that my doctors did a terrific job, given that my situation was quite challenging because of the size. They obviously devised a very good treatment plan and I am very thankful to them as well.
Marianna
