Author Topic: This Week 4/25/10 in the AN World  (Read 3677 times)

Rich56

  • Full Member
  • ***
  • Posts: 241
  • a caregiver's 2-cents
This Week 4/25/10 in the AN World
« on: April 25, 2010, 01:59:49 pm »
Sara’s (saralynn143) 4/15/10 MRI was clear.

Marianna’s (mk) 4/16/10 MRI showed that everything is stable.

Mary’s (MLB57) 4/21/10 MRI revealed signs of shrinkage.

Ernie’s (EJTampa) 4/23/10 MRI was clear also.

Kathy’s (kathy g) MRI last week showed that her AN has shrunk as well.

GREAT NEWS!! Congratulations to all of you and the fantastic MRI results you received.

Lisa (Sefra22) we’re sorry there was a mix up with your 4/21/10 MRI, you have every right to be “PEEVED” as you put it.  Hopefully they will make it right, and the retest (with contrast) will be covered, and accompanied with a big “we sorry”.  I guess this is a reminder to all of us to double check with the Dr./radiology department that the MRI will be done with and without contrast.

This week:

Spring seems to be the season for MRIs :o :o

Tuesday Debbi (Debbi) will have her 2 yr MRI.  Debbi we hope your MRI proves to be clear.  I know you’ve heard it before but, thank you and the thoughtfulness of your friend for starting The Magic Scarf, it’s meant so much to so many.

Saturday Scarlett (SML), the 13th recipient of The Magic Scarf, will have her 1 yr MRI.  Dear, even though you had good surgical results, you still have had a very tough year.  I hope things get easier :-*  Clean MRI results would certainly go a long ways.

Our hopes and prayers will be that you both have clear and unremarkable MRIs this week.

On Friday we’d like to wish Happy Birthday to Patrick (texsooner) as he celebrates his 50th birthday.  Congratulations on your completion of the MS 150 bike run from Houston to Austin, and the award you received as the top fundraiser, nice photos. 

As always, we hope each day gets easier as each of you continue to recover from your surgeries, and procedures.

Hope everyone has a nice week,

Rich & Scarlett
SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: This Week 4/25/10 in the AN World
« Reply #1 on: April 25, 2010, 02:08:17 pm »
Spring does seem to be MRI season, which reminds me that I need to schedule my 3rd post op MRI in the next few weeks.

Good luck to Debbi and Scarlett - may your MRIs be clean.

And a huge birthday wish to Patrick!  50 - what a milestone  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: This Week 4/25/10 in the AN World
« Reply #2 on: April 27, 2010, 05:52:38 am »
Thanks for the good wishes.  I am feeling a bit more anxious this year than last, probably because it's been a full year since the last MRI this time.  Mary Beth (not sure what her forum handle is) is also going to NYU today for her MRI, so maybe we'll meet at the Tunnel O Doom.  I'm seeing Dr Golfinos after the MRI today, so will get prelim results immediately (thank goodness!!)

Scarlett, I'm sending lots of good thoughts your way and hope that your MRI is blob-free!

Debbi (valium in hand)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

SML

  • Full Member
  • ***
  • Posts: 204
  • If wishes were like horses, we would ride.
Re: This Week 4/25/10 in the AN World
« Reply #3 on: April 27, 2010, 09:28:23 am »
Thanks Debbi, Jan and my dear husband Rich :-* for the good wishes. I’m a little nervous about going this time too and thinking about taking a valium as well (still have some left over from the surgery)! I haven’t needed it in the past, but for some reason, I’m feeling I won’t be able to lay on the back of my head for that long without having to move. It’s been uncomfortable to lay on since the surgery, but I have periods when it is slightly uncomfortable and periods when it is very uncomfortable (borderline painful). I’m in the VERY uncomfortable period right now :(. I also called to make sure about the contrast. Thank you Lisa for sharing your experience… I’m so sorry you had to deal with that.

Debbi, seeing the doctor right after is great. I have to wait till the 13th for the news (the number 13 does seem to pop up a lot with me – hope it’s just a lucky for me as being the 13th recipient of the magic scarf was ;D) . Sending you and Mary Beth prayers for a clean (aka: blob-free) MRI and an easy go of it in the “tube of gloom”.

Happy Birthday Patrick!

Good wishes to all,
Scarlett
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: This Week 4/25/10 in the AN World
« Reply #4 on: April 27, 2010, 01:09:52 pm »
Just wanted you all to know that I am blob-free!!  Mary Beth was still waiting to see Dr Golfinos when I left but she'll text me later.  It was great to see her - we talked none stop and I am sure we drove everyone else nuts!

Scarlett, if you're feeling anxious I do recommend the valium.  It makes it so. Much easier and less stressful.I'm sorry you have to wait so long for results - that in itself is a huge stressor!  I am very fortunate to be able to see the surgeon right away.

Thabks for all the good thoughta and prayers.
Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: This Week 4/25/10 in the AN World
« Reply #5 on: April 27, 2010, 03:51:19 pm »
Congrats on being "blob-free" Debbi  ;D
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Pooter

  • Hero Member
  • *****
  • Posts: 1291
  • The Official Breeze Conjurer - PBW
    • Blog Website
Re: This Week 4/25/10 in the AN World
« Reply #6 on: April 27, 2010, 04:05:57 pm »
Yea!  Congrats, my surgery twin!  I still haven't scheduled my annual MRI and follow up... I guess I need to do that, huh?

Regards,
Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

SML

  • Full Member
  • ***
  • Posts: 204
  • If wishes were like horses, we would ride.
Re: This Week 4/25/10 in the AN World
« Reply #7 on: April 27, 2010, 05:07:43 pm »
Congratulations Debbi! That is great news!!

Scarlett & Rich
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: This Week 4/25/10 in the AN World
« Reply #8 on: April 27, 2010, 08:41:38 pm »
I still haven't scheduled my annual MRI and follow up... I guess I need to do that, huh?

Absolutely!  Don't put this off, Pooter!!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: This Week 4/25/10 in the AN World
« Reply #9 on: April 28, 2010, 12:29:08 pm »
Brian - get on the phone RIGHT NOW and make your appointment!!  ::)  Can't have my surgery twin lagging behind here, ya know.

Debbi (more coherent today sensa valium!)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com