Finished CK in mid-March. Thought I'd give an update. You can read my previous posts for my somewhat rocky first few weeks.
At this point, I feel 100% normal. No balance/disequilibrium issues whatsoever. These gradually disappeared. No hearing loss whatsoever (docs say hearing improved, couldn't prove it by me). Tinnitus has returned to pre-treatment levels. Of course, no facial weakness, etc.
Only negative point is that my normally low blood pressure skyrocketed after treatment, and won't go back down. We don't know why. I'm on 20 mg. lisinopril. For the first time since I started taking it nearly 3 weeks ago, I forgot one dose, and by bp shot right back up the next day. So, unfortunately, it's just "capped" by the meds. Working on diet and exercise (was barely overweight and a daily exerciser before hand), still hoping that might help. Will have first followup MRI in June.
All in all, so far so good . . . waiting to see if it "worked."
