Author Topic: just had surgery...  (Read 3323 times)

phx

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just had surgery...
« on: March 10, 2010, 06:34:45 pm »
Anyone still have a little bit of their tumor left? Has it grown since?

Syl

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Re: just had surgery...
« Reply #1 on: March 10, 2010, 08:16:53 pm »
A tiny bit of my 1.5cm was left behind. My 1 yr MRI showed there was no new growth. I'm due for my 2 yer MRI in June.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Lizard

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Re: just had surgery...
« Reply #2 on: March 10, 2010, 08:18:11 pm »
No but have heard a lot about debulking followed by radiation and its successes.  I'm sure some people have had this, Jim I believe?  Not sure if this is an option for you, but something to possibly consider?



Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

epc1970

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Re: just had surgery...
« Reply #3 on: March 11, 2010, 11:09:56 am »
Phx
I had about 7mm of my 3.8 cm AN left behind because it was too cozy with my facial nerve. I am almost 2 years post op and have had no growth, if anything a little bit of shrinkage. I just had my 3rd post op MRI and do not need another one for 18 months. If you look in the 'post treatment" section there is a treat that Alicia started that is called "Slivers"-It has a discussion with a few of us that have had tumor left behind. How did your surgery go? I'm guessing from your question, they had to leave some tumor behind.  How are you feeling?
Erin

jazzfunkanne

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Re: just had surgery...
« Reply #4 on: March 11, 2010, 11:15:27 am »
I have a little left behind, scans so far have been clear, i am now 3 years post op, and due another scan next yearx
over 4.5cm AN removed dec 06

tenai98

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Re: just had surgery...
« Reply #5 on: March 11, 2010, 02:00:22 pm »
I too have a little left over to preserve my facial nerve...after two MRIs, tumor is stable and if regrowth occurs, then i will have the squatter zapped
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

phx

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Re: just had surgery...
« Reply #6 on: March 12, 2010, 04:42:30 pm »
Thank you everyone!!

blanc

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Re: just had surgery...
« Reply #7 on: April 06, 2010, 02:52:21 pm »
I had surgery on the 11th of march and a bit of tumor was lest on my facial nerve. Not yet sure how much. Will be seeing my doctors next week. Will update you on that

kiwi

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Re: just had surgery...
« Reply #8 on: April 07, 2010, 01:16:32 am »
I had surgery on 16th March and they left some tumour on my facial nerve....I too am not sure how much yet. 
3.6cm AN Left side diagnosed Dec 09.
Translab surgery 16th March 2010
Left SSD, Facial Paralysis
CSF Leak surgery 11th May 2010