Author Topic: Post op day three  (Read 4792 times)

neuroma_racer

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Post op day three
« on: April 11, 2010, 11:56:02 am »
Out of step-down unit, off of telemetry
walking more, eating, hardly using any darvocet for discomfort

developed a small left sided CSF rhinorrhea leak (<1cc total) none since then
starting some diamox to slow csf production and lessen pressure while things finish sealing

this will probably push discharge from Monday to Tuesday to monitor for any additional leaks

feeling good
no nausea no vertigo
still feel a lot of fluid in left ear

very veryhappy with all aspects, team, decisions, staff, and hosiptal

aces,
Jesse
mild hearing loss - 12/'09
left 4x5x7mm, intracannicular schwanomma
MIDDLE FOSSA surgery 4/'10, Dr John McElveen, et.al.
was actually a FACIAL NERVE NEUROMA
hearing worsened 4/'12 - Tumor quadrupled to 9x9x15mm
cyberknife 8/'12
1.5yr MRI shows shrinkage % 85% necrosis
LEFT hearing & tinnitus SUCK

Jim Scott

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Re: Post op day three
« Reply #1 on: April 11, 2010, 02:24:45 pm »
Jesse ~

Thanks for the updates.  We're delighted to learn that you're doing great !  I'm sure you'll do even better once you're at home.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

LisaP

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Re: Post op day three
« Reply #2 on: April 11, 2010, 03:17:10 pm »
Jesse,

Great News, best wishes and good luck with your recovery.

LisaP ;D
LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

leapyrtwins

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Re: Post op day three
« Reply #3 on: April 11, 2010, 04:51:24 pm »
Jesse -

just realized from reading your profile that you had a facial neuroma as opposed to an acoustic neuroma.

Did your docs think this might be a possibility going into the surgery? or was it a surprise to them?

Just curious,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

neuroma_racer

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Re: Post op day three
« Reply #4 on: April 11, 2010, 08:19:55 pm »
Didn't know it was a facial neuroma till they got in there
Excised a small amount of it, and unroofed the canal, so it has room to grow if it needs to.

Facial neuromas groom more slowly than acoustics,
So come 10 -15 - 20 or more years from now, i may need another operation, in which they can splice in a bit of nerve from elsewhere,
have a brief weakness, while the neural circuits reestablish themselves, and then have pretty good facial muscle recovery.

Thanks god i didn't nuke it, or the remnants would have been so scarred down that a neural repair would be very difficult, and less promising,
And since it would have been the facial nerve itself that got gamma knifed, i would have almost certainly had a VI/VI facial weakness for years or even the rest of my life.

Mcelveen says that in his experience about 1 in 200 neuromas turn out ot be facial in origin, instead of vestibular/acoustic

I am so very very grateful to God, the team, and everyone that has been praying for me.
Hearing intact,
Balance intact
Facial expression 98% intact
No headache
Hopefully home tomorrow if csf leak remains stopped.
Far better outcome than i expected.

Thanks to everyone for your notes, thoughts, and prayers,
This forum has been a big help going through all this.

Aces,
Jesse

« Last Edit: April 12, 2010, 01:13:04 am by neuroma_racer »
mild hearing loss - 12/'09
left 4x5x7mm, intracannicular schwanomma
MIDDLE FOSSA surgery 4/'10, Dr John McElveen, et.al.
was actually a FACIAL NERVE NEUROMA
hearing worsened 4/'12 - Tumor quadrupled to 9x9x15mm
cyberknife 8/'12
1.5yr MRI shows shrinkage % 85% necrosis
LEFT hearing & tinnitus SUCK

Cheryl R

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Re: Post op day three
« Reply #5 on: April 11, 2010, 08:31:37 pm »
Jesse,   I wonder if NF2s would have faster growing facial neuromas than regular neuromas.    I am NF2 and mine grew from a maybe something spot to 2 cm in a year.   But I am not the typical ANer so don't let it scare you.      Mine was all removed but nerve severed and a aural nerve graft in at the same time with some movement back.  I look ok at rest.    I also was so glad to not have had radiation with no 1 AN as this was no 2.            One just never knows with all this.             Mine was questioned if maybe was facial as had some drooping started maybe a month pre op. 
                             Just hope your recovery keeps going well.                 Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

yardtick

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Re: Post op day three
« Reply #6 on: April 11, 2010, 09:55:31 pm »
Hi Jesse,

I too have a facial neuroma.  I had a translab and the tumour was debulked.  A piece of bone from the canal was cut away to allow for growth.  My ear drum was destroyed along with the three bones in my middle ear.  I too will need a nerve graft at some point in time.  I have some facial weakening that is noticeable when I am tired or in pain.  I'm one of the lucky ones who suffer from headaches and facial pain.  I also have balance issues.

I was also told by two radio-neurosurgeons any type of radiation was not an option.

You are doing great!

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

neuroma_racer

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Re: Post op day four
« Reply #7 on: April 12, 2010, 06:04:14 am »
Cleared for take off
heading home
no more csf leakage , but will e on diamox fr like two weeks to keep the presure dwon while things keep sealing up

really could sleep last night , even despite the ambien
can't wait to get off of the steroids

now praying for slow to no growth of the dacial neuroma

aces
thanks all
Jesse

due for a check up 4/21, when they come t Greenville
will update then
j
mild hearing loss - 12/'09
left 4x5x7mm, intracannicular schwanomma
MIDDLE FOSSA surgery 4/'10, Dr John McElveen, et.al.
was actually a FACIAL NERVE NEUROMA
hearing worsened 4/'12 - Tumor quadrupled to 9x9x15mm
cyberknife 8/'12
1.5yr MRI shows shrinkage % 85% necrosis
LEFT hearing & tinnitus SUCK

Desilu

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Re: Post op day three
« Reply #8 on: April 12, 2010, 10:01:20 am »
Hi Jesse,

Glad to hear that everything is going well. You'll feel much better being at home and sleeping in your own bed. Please keep us posted on your progress. Sending prayers for a speedy recovery! Ann
HEI July 26, 2005
5mm X 8mm Left AN
Middle Fossa
Dr. Brackmann & Dr. Hitselberger

Debbi

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Re: Post op day three
« Reply #9 on: April 12, 2010, 01:45:04 pm »
Enjoy being home and sleeping in your own bed!  That will probably help you to sleep somewhat better, although the steroids will still keep you revved up for awhile.  Still, nothing like being home - own bed, own pillows, no weird hospital noises.

Rest well!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

cindyj

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Re: Post op day three
« Reply #10 on: April 12, 2010, 02:27:36 pm »
Ah, know you will be so glad to be home!  And, I hear you about the steroids - they do the trick, but they are no fun to be on...take it easy still for awhile.  Thanks for the updates.  I may be heading to Greenville in a few weeks to visit my mom...we'll have to meet up by the suspension bridge downtown or something!

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

knakag01

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Re: Post op day three
« Reply #11 on: April 12, 2010, 03:00:16 pm »
Jesse,
It is so wonderful to hear how well you are doing. Best wishes for the remainder of your recovery!

Kim
Kim
1.9cm x 1.2cm AN Right side
Diagnosed 11/09
Translab with Dr. Jackler @ Stanford on 5/20/10
Facial Paralysis (temp) & SSD Right side, some balance issues but not as bad as I thought :)

wendysig

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Re: Post op day three
« Reply #12 on: April 12, 2010, 08:32:52 pm »
Jesse,

I am very late in learning about you.  I haven't been on much in the last few months due to personal issues.  It sounds like you are doing very well and I hope your recovery is a smooth, uncomplicated one.  For now, get lots of rest and keep us updated on how you are doing when you feel up to it.

Best wishes,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

HeadCase2

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Re: Post op day three
« Reply #13 on: April 13, 2010, 01:19:12 pm »
Jesse,
 Best wishes on the continuing recovery.  You'll be back behind the wheel and hitting the banking in no time.
Regards,
  Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

Vivian B.

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Re: Post op day three
« Reply #14 on: April 15, 2010, 01:42:00 pm »
Hi Jesse,

Great updates. It looks like you are geting better every day. I am very happy for you.

Vivian
CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.