Author Topic: Prayer warriors Please  (Read 3958 times)

tenai98

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Prayer warriors Please
« on: April 15, 2010, 04:01:36 pm »
Please pray for my nephew and his wife who lost ther 19month son last night.  K. was born basically a vegetable unable to eat. He was blind, deaf and mute as well with no muscle tone whatsoever...this was their first child and need mega prayers. There is a new little angle in heaven tonightl
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Jim Scott

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Re: Prayer warriors Please
« Reply #1 on: April 15, 2010, 04:04:19 pm »
Jo ~

That is a very big mountain to climb.  They are in my prayers.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

anissa

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Re: Prayer warriors Please
« Reply #2 on: April 15, 2010, 04:42:35 pm »
They are in my prayers Jo.
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

saralynn143

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Re: Prayer warriors Please
« Reply #3 on: April 15, 2010, 05:48:47 pm »
I'm so sorry for their loss, Jo, and yours as well. May God be with you all.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Lizard

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Re: Prayer warriors Please
« Reply #4 on: April 15, 2010, 07:42:38 pm »
So sorry I will be praying for them.
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

CHD63

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Re: Prayer warriors Please
« Reply #5 on: April 15, 2010, 07:51:35 pm »
What a difficult struggle they have had.  My prayers are with them ..... and you.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

lori67

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Re: Prayer warriors Please
« Reply #6 on: April 15, 2010, 08:03:28 pm »
Jo,

That is so awful to hear.  I can't imagine the pain they must be in.  They'll definitely be in my prayers.  I'm sure they treasured every day they had with him.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Prayer warriors Please
« Reply #7 on: April 15, 2010, 09:04:16 pm »
Prayers from me too.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

msmaggie

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Re: Prayer warriors Please
« Reply #8 on: April 16, 2010, 05:34:17 am »
Prayers are on the way!
Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

Brendalu

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Re: Prayer warriors Please
« Reply #9 on: April 16, 2010, 07:38:00 am »
It is so hard to a child at any stage of their life.  I am sending up mega prayers, I have been in their shoes.  To the newest little Angel...rest in peace, little one, dance with the stars and float on the clouds.  Hugs and many prayers to the parents and family for their loss.
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

cindyj

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Re: Prayer warriors Please
« Reply #10 on: April 16, 2010, 11:03:15 am »
Oh, Jo, so sorry to hear that - I have no words, but many thoughts are with you and the family,

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Soundy

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Re: Prayer warriors Please
« Reply #11 on: April 17, 2010, 07:32:31 am »
Rock in hand ... Thoughts and prayers coming their way
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Syl

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Re: Prayer warriors Please
« Reply #12 on: April 17, 2010, 08:48:20 am »
JO:

I'm so sorry! My prayers are with you, your nephew & his faimily.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

wendysig

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Re: Prayer warriors Please
« Reply #13 on: April 19, 2010, 04:48:03 am »
Jo,

What can I say.  So sorry for your loss and your niece and nephew too.  Prayers headed your way.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!