« previous next »
Pages: [1]

Author Topic: A big article on AN in today's medical news  (Read 4811 times)

jerseygirl

  • Hero Member
  • *****
  • Posts: 801
A big article on AN in today's medical news
« on: April 21, 2010, 11:30:06 am »
There is a big and pretty comprehensive article on ANs in today's medical news. Here is a link:

http://www.medicalnewstoday.com/articles/186184.php

In treatment options section it names endoscopic removal as possible choice!

            Eve
Logged
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

lori67

  • Hero Member
  • *****
  • Posts: 3113
Re: A big article on AN in today's medical news
« Reply #1 on: April 21, 2010, 12:08:44 pm »
How about that?  We're finally getting some publicity!   :)

Lori
Logged
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

CHD63

  • Hero Member
  • *****
  • Posts: 3235
  • Life is good again!!
Re: A big article on AN in today's medical news
« Reply #2 on: April 21, 2010, 12:29:29 pm »
Yeah!!  ..... and ANA and the forum (virtual support group) are even mentioned specifically on the Treatment Options page.

Thanks, Eve, for finding and sending this link.

Clarice
Logged
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

grega

  • Sr. Member
  • ****
  • Posts: 318
Re: A big article on AN in today's medical news
« Reply #3 on: April 21, 2010, 12:37:53 pm »
Thanks Eve, for passing this along.

I read the main page and will read the links later.  IMO, Stephanie Brunner made this kinda confusing by writing 2 completely contradictory phrases only two short paragraphs apart:

"According to Medilexicon's medical dictionary:  Vestibular schwannoma is "a benign but life-threatening tumor..."

And then "An acoustic neuroma is not normally a life-threatening condition."

What's she thinking .... time to override Medilexicon's medical dictionary?
« Last Edit: April 21, 2010, 12:41:26 pm by grega »
Logged
1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

nanramone

  • Guest
Re: A big article on AN in today's medical news
« Reply #4 on: April 21, 2010, 02:20:29 pm »
also - why do some articles say this is one of the most common kinds of brain tumors, and others call it a rare brain tumor? Which is it? Curious....
Logged

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Re: A big article on AN in today's medical news
« Reply #5 on: April 21, 2010, 02:55:53 pm »
Brain tumors are rare, but of brain tumors, AN's are most common.  So it's a common rare tumor! ;D

Sue in Vancouver, USA
Logged
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Pooter

  • Hero Member
  • *****
  • Posts: 1291
  • The Official Breeze Conjurer - PBW
    • Blog Website
Re: A big article on AN in today's medical news
« Reply #6 on: April 21, 2010, 03:20:31 pm »
So, we're all commonly rare?  Heh..

B
Logged
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: A big article on AN in today's medical news
« Reply #7 on: April 21, 2010, 03:45:49 pm »
Eve ~

This description of an acoustic neuroma is generally correct and similar to the many other descriptions I've read for ANs.  There are a few slight contradictions ('common/rare') but overall, I found the description accurate and thus, useful.  Thanks for the link.

Jim
Logged
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lori67

  • Hero Member
  • *****
  • Posts: 3113
Re: A big article on AN in today's medical news
« Reply #8 on: April 21, 2010, 08:26:28 pm »
Or maybe we're rarely common?
Logged
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: A big article on AN in today's medical news
« Reply #9 on: April 22, 2010, 05:55:19 am »
Hmm.  I always thought we were unique  :P
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Lizard

  • Hero Member
  • *****
  • Posts: 791
Re: A big article on AN in today's medical news
« Reply #10 on: April 22, 2010, 09:26:46 am »
Pretty good article it was nice to see some good concise information all in one place...
I am still unique no matter what that article says...1 in 100K?  Hmmmm....
Logged
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Re: A big article on AN in today's medical news
« Reply #11 on: April 22, 2010, 12:58:08 pm »
We're something, that's for sure.

Sue in Vancouver USA
Logged
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: A big article on AN in today's medical news
« Reply #12 on: April 22, 2010, 03:44:01 pm »
Quote from: Sue on April 22, 2010, 12:58:08 pm
We're something, that's for sure.

LOL  :D
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: A big article on AN in today's medical news
« Reply #13 on: April 23, 2010, 05:59:05 am »
Eve

Thanks for sharing this article.  It's nice to know we're getting some attention from the medical community as a resource.

Wendy
Logged
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!
Pages: [1]
« previous next »