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Author Topic: 3rd MRI - good news!  (Read 3421 times)

novagirl

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3rd MRI - good news!
« on: May 17, 2010, 07:26:25 am »
Hello everyone - I don't post here often as I try not to dwell on my AN too much in between MRIs :). I was diagnosed in July of last year and have been watching and waiting since then. So I just wanted to share some good news - had my hearing test and an MRI last week. The results were surprisingly wonderful - 100% word recognition and no change in the tumor size. I will have my neuro appointment on June 2nd, but given the results, will opt to wait for another six months. I already made up my mind that if and when treatment is needed I'll go for CK. But in the meantine, the plan is to w&w for as long as possible. I don't really have any tips for w&w, other than keeping a positive outlook, not dwell on the diagnosis and if you believe in God, know that life is bigger than our short mortal existence :).

Good wishes to everyone.
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Right AN 10 x 10 x 7 mm - dx 7/28/09; w&w for three years
CK at Stanford October 2012 - Dr. Chang and Dr. Soltys
Oct'12: 15 x 14 x 10 mm
Oct'14: 12 x 6 x 5 mm

Mickey

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Re: 3rd MRI - good news!
« Reply #1 on: May 17, 2010, 07:57:16 am »
Way to go novagirl! Keep up the good work. Best wishes, Mickey
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Lizard

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Re: 3rd MRI - good news!
« Reply #2 on: May 17, 2010, 08:00:12 am »
Awesome!
liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Jackie

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Re: 3rd MRI - good news!
« Reply #3 on: May 17, 2010, 08:54:39 am »
Congratulations Novagirl,

I love your attitude and outlook! Continued good fortune,
Blessings,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

leapyrtwins

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Re: 3rd MRI - good news!
« Reply #4 on: May 17, 2010, 02:52:16 pm »
Congrats, Novagirl.

Excellent news!   ;D

Hope MRI #4 brings more of the same.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: 3rd MRI - good news!
« Reply #5 on: May 17, 2010, 02:57:12 pm »
Novagirl ~

Congratulations are certainly in order and of course I hope this kind of positive MRI and hearing tests results continue for, oh, a few more decades, at least.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.
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