Author Topic: Kris is in L.A  (Read 3443 times)

Lainie181818

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Kris is in L.A
« on: May 11, 2010, 04:09:47 pm »
Kris and her Mom Kim arrived in L.A this morning. I picked them up and took them to their hotel. Nancy is going to see them this afternoon and take them grocery shopping. Thursday either David or Mike will take Kris to O.B appointment. So far we have everything covered and hopefully they can just relax and enjoy the great L.A weather.
Lainie

Soundy

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Re: Kris is in L.A
« Reply #1 on: May 11, 2010, 04:44:02 pm »
glad she is being taken care of ... this journey can be scary as is ... but add in pregnancy and being away from your home and it has got to be compounded ...

keep us updated and give her some hugs
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

CHD63

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Re: Kris is in L.A
« Reply #2 on: May 11, 2010, 05:04:06 pm »
This is what makes this forum so great!  What a joy you are to be able to help them during this unbelievably stressful time.

Thanks so much to all of you.

Best thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Captain Deb

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Re: Kris is in L.A
« Reply #3 on: May 12, 2010, 11:53:03 am »
Fortunately I had family in LA to take me to my appointments at House and cart me around the area when I had my surgery out there 7 years ago.  What a wonderful thing this online community is, that people can be so helpful to other newbies during such a frightening time as a way of giving back. Keep it up you LA Angels!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Debbi

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Re: Kris is in L.A
« Reply #4 on: May 12, 2010, 02:24:02 pm »
I think that what Lainie, Nancy and David do is just amazing and proves my deep belief that only the very nicest, most generous people get acoustic neuromas.  You Aners out in LA are really awesome.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

lori67

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Re: Kris is in L.A
« Reply #5 on: May 12, 2010, 02:54:03 pm »
LA Angels is right!  How amazing that you are able to help someone you really don't even know.  You guys are great.  What a comfort it must be to them to know they have people looking out for them.

Don't forget - we like to see pictures!!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Lizard

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Re: Kris is in L.A
« Reply #6 on: May 12, 2010, 03:12:14 pm »
Its so great to have this place where we can all meet where otherwise we would not have to opportunity to...this is a very generous and caring thing to be giving.  I can take a nice big deep breath for her...
I love this forum you guys are the best!
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

ksiwek

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Re: Kris is in L.A
« Reply #7 on: May 17, 2010, 08:05:15 pm »
Team LA is amazing!  How can I ever thank them for their kindness and generous spirit!?!?!    I am  amazed and humbled and hope that someday I will be able to provide/give back some kind of support to future ANers...not that I wish this on anyone!

Nancy or hubby will be updating soon...baby is being delivered tomorrow!!!!!!!!!!!!!!!!!!!  Here we go!  So excited to meet our little boy!

Also, so happy with my surgeons!  My mind is at ease that I am where I need to be!

Best,
Kris
Translab 6/4/10 for 4+ cm left AN.  Drs Friedman and Schwartz at HEI saved my life!
BAHA surgery on 10/7/10 with Dr Battista of Chicago Ear Institute (Oticon Ponto Pro)

Lizard

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Re: Kris is in L.A
« Reply #8 on: May 17, 2010, 08:18:34 pm »
Congrats you're about to enter a whirlwind. Enjoy the ride and I'll say my prayers for you and your new little man.
Take care and can't wait to hear how everything went !  :)
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

saralynn143

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Re: Kris is in L.A
« Reply #9 on: May 17, 2010, 09:36:12 pm »
Kris, I'm so glad you posted as I had not run into your story until this thread and was able to go back and read your earlier posts to catch up.

My prayers are with you that everything goes well both in childbirth and your AN surgery.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

CHD63

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Re: Kris is in L.A
« Reply #10 on: May 18, 2010, 06:59:51 am »
Kris .....

Somehow I missed your post yesterday.  Now I am thinking about you so much today and anxious to hear that all is well with you and your new little guy!

Many thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

another NY postie

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Re: Kris is in L.A
« Reply #11 on: May 18, 2010, 08:37:28 am »
Kris, you are in the best hands!  Hope all goes smoothly today and I will praying for you every step of the journey!
Cheryl
5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

lori67

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Re: Kris is in L.A
« Reply #12 on: May 18, 2010, 11:15:21 am »
Hope all is well out there on the West coast!!

Thinking about you! 

What's his name???

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.