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Author Topic: 11 year MRI followup results  (Read 2264 times)

JimmyD

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11 year MRI followup results
« on: May 05, 2010, 01:46:44 pm »
Right side AN has gone from 2.2 cm to 1.2 cm and stabilized.Left side AN has gone from 2.6 cm to 2.2 cm and shows no sign of growth.
They did find cyst in my sinus cavity and mucus so this could be the cause of the"ginger ale head "I have been experiencing.
Hang in there everybody.
Jim
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Glioma Tumor left optic nerve 1960,RS AN 2.2CM FSR 5 treatments @JHH by Dr Williams in 1999 & LS AN 2.6CM 30 treatments 2007 by Dr Brian Chon@Centra State,NJ.Blind in L.eye,deaf in R.ear.Test for NF2 came back negative.Doing OK.

novagirl

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Re: 11 year MRI followup results
« Reply #1 on: May 05, 2010, 02:45:45 pm »
Jim - thank you for this update. It is very encouraging. I haven't had my treatment yet. But will have another MRI this month and then see. I already decided that when I do go for treatment, it'll be radiosurgery, so results like yours are really-really encouraging.
Best wishes.
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Right AN 10 x 10 x 7 mm - dx 7/28/09; w&w for three years
CK at Stanford October 2012 - Dr. Chang and Dr. Soltys
Oct'12: 15 x 14 x 10 mm
Oct'14: 12 x 6 x 5 mm

Jim Scott

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Re: 11 year MRI followup results
« Reply #2 on: May 05, 2010, 03:50:33 pm »
Jimmy D ~

Great news!  I appreciate that you're sharing it with other AN patients that can use the encouragement from a 'veteran'.  Thanks!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

sunfish

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Re: 11 year MRI followup results
« Reply #3 on: May 05, 2010, 04:11:14 pm »
Thanks for giving us a big ray of hope!
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Rt. side 14mm x 11mm near brain stem
Severe higher frequency hearing loss
I use a hearing aid (Dot 20 by Resound)
Balance issues improving!!!!
Cyberknife March17, 2010
Roper Hospital Cancer Center, Charleston, SC

JimmyD

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Re: 11 year MRI followup results
« Reply #4 on: May 05, 2010, 05:11:50 pm »
Glad to help.The only suggestion I can offer is watch the growth carefully paying attention to growth spurts.
If you are going for FSR I would go with the larger amount of treatments example 30 smaller doses over 5 mega doses.
You will get lass swelling of the AN giving you a better chance of any collateral damage.
Jim
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Glioma Tumor left optic nerve 1960,RS AN 2.2CM FSR 5 treatments @JHH by Dr Williams in 1999 & LS AN 2.6CM 30 treatments 2007 by Dr Brian Chon@Centra State,NJ.Blind in L.eye,deaf in R.ear.Test for NF2 came back negative.Doing OK.
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