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Author Topic: Good News!!!  (Read 2617 times)

Jwh

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Good News!!!
« on: May 24, 2010, 06:22:20 pm »
I went into NYU this afternoon and had my MRI.  Dr. Roland said the films looked "CRYSTAL CLEAR"!!!!  YEAH  I'm so happy and relieved.  I feel like today was a milestone.

I told him about the other ear and the sensitivity he told me it was Hyperacusis.  Not uncommon with SSD.  I guess just something I will live with.

Thanks everyone who helped me through this week with your positive thoughts and prayers.  It help tremendously!

Jennifer
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Captain Deb

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Re: Good News!!!
« Reply #1 on: May 24, 2010, 06:25:36 pm »
Hip hip hooray!!

Let's raise a cheer!

Jenn's MRI

Was crystal clear!!!

Hugs,

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Syl

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Re: Good News!!!
« Reply #2 on: May 24, 2010, 07:22:27 pm »
Congratulations!! That is excellent news!!!

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

CHD63

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Re: Good News!!!
« Reply #3 on: May 24, 2010, 08:15:42 pm »
Whew!  Now we can all breathe in and out a little easier.  Thanks for letting us know ..... that is always good news to have a crystal clear MRI!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

leapyrtwins

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Re: Good News!!!
« Reply #4 on: May 25, 2010, 06:39:28 am »
Excellent news, Jennifer  ;D

Congrats!!!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

patt

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Re: Good News!!!
« Reply #5 on: May 25, 2010, 08:21:09 am »
Jennifer ---

So glad you had GREAT news!!!    Now you can put that behind you and enjoy life much more.    Enjoy the rest of your summer.   Hope you come back and visit with us and let us know how you are doing.     

I am waiting for a call from my Dr to when my FSR treatments will begin.  I am anxious --- want to get this going and done!!!

Patt from Minnesota
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Patt  - age 63
Diagnosed - 3/22/2010  -- sudden hearing loss Rt ear
Right ear -- 2.7cm
Left ear -- limited hearing
Will be having "FSR" 
Starting date is June 1st, 2010
30 treatments  --  6 sites
July 12, 2010 -- Completed "FSR" treatments
Oct 2010 - MRI -Slight decrease in size

Huber920

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Re: Good News!!!
« Reply #6 on: May 25, 2010, 08:45:51 am »
Great news Jennifer!!!
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05 - Cholesteatoma removed (2 surgeries)
03/07 - Diagnosed 3mm AN
06/07 - Middle Cranial Fossa approach to remove (failed extraction)
03/10 - MRI showed growth to 7mm
06/10 - June 9th surgery on the way

Lizard

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Re: Good News!!!
« Reply #7 on: May 25, 2010, 08:46:12 am »
So happy for you, must be such a relief!
Congrats on a clear MRI!!!!
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Jim Scott

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Re: Good News!!!
« Reply #8 on: May 25, 2010, 12:19:33 pm »
Jen ~

Please allow me to add my congratulations to the mountain you've already received.  Your euphoria  is contagious.  Thanks!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

moe

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Re: Good News!!!
« Reply #9 on: May 25, 2010, 01:03:59 pm »
I love good news ;D
What a relief for you. Go celebrate!!
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Jwh

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Re: Good News!!!
« Reply #10 on: May 25, 2010, 03:47:50 pm »
THANK YOU THANK YOU THANK YOU!!
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

wendysig

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Re: Good News!!!
« Reply #11 on: May 31, 2010, 06:01:57 pm »
I'm sorry about the hyperacausis but very happy about the clean MRI!!!  Congratulations!!!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: Good News!!!
« Reply #12 on: June 01, 2010, 02:31:55 pm »
Hi Jen-

Been off this board for a few days, so just saw this - congratulations!!  Now you're good for another year. 

BTW, I also have the hyperacusis thing - pretty common, I guess.  I use an ear plug sometimes if I know that I am going to be around the kinds of noises that bother me. 

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jtd71465

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Re: Good News!!!
« Reply #13 on: June 01, 2010, 07:33:59 pm »
Hi Jen-

Glad all is well. 


Joe-
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Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos
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