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Author Topic: I'm nervous....  (Read 1749 times)

Jwh

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I'm nervous....
« on: May 23, 2010, 11:28:59 am »
tick tick tick tomorrow is the big MRI day at NYU.  Wish me some peace and an unremarkable MRI!  ( :
jen
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

patt

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Re: I'm nervous....
« Reply #1 on: May 23, 2010, 11:41:56 am »
Jen ---

Will be thinking about you ---- let us know how you do.      Remember -- you have lots of friends on this forum that are praying for you!!

Patt from Minnesota
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Patt  - age 63
Diagnosed - 3/22/2010  -- sudden hearing loss Rt ear
Right ear -- 2.7cm
Left ear -- limited hearing
Will be having "FSR" 
Starting date is June 1st, 2010
30 treatments  --  6 sites
July 12, 2010 -- Completed "FSR" treatments
Oct 2010 - MRI -Slight decrease in size

iluuvpups

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Re: I'm nervous....
« Reply #2 on: May 23, 2010, 11:48:34 am »
Good luck Jen!  Try to stay positive.  :-)
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Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait

CHD63

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  • Life is good again!!
Re: I'm nervous....
« Reply #3 on: May 23, 2010, 11:56:30 am »
Deep, slow breaths, Jen ......

Lots and lots of thoughts and prayers!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jwh

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Re: I'm nervous....
« Reply #4 on: May 23, 2010, 03:34:08 pm »
thanks everyone!  It feels so good to hear from you - all those nice thoughts.  thanks for understanding  :)
Logged
5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Lizard

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Re: I'm nervous....
« Reply #5 on: May 23, 2010, 03:55:20 pm »
Hang in there, and please let us know how everthing goes.  And yes deep breaths...
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

moe

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Re: I'm nervous....
« Reply #6 on: May 23, 2010, 11:42:35 pm »
Peace to you Jen,
Since they got it all the second time around, should be clean :)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

wendysig

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Re: I'm nervous....
« Reply #7 on: May 24, 2010, 03:49:03 pm »
Jen,

Since I don't see a post from you yet today, I'm a little concerned about how things went today.  Hoping you got good news but have been too busy to post.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!
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