CSF Leak for 7 months - 5 surgeries failed, still leaking…

[tenai98]

Just found this post...wow...I am glad they finally got that leak fixed...fingers crossed that it stays sealed....Another fellow canadiian here. I was in your area several yrs ago for a wedding....Its beautiful in St-John..and I did the kiss the fish and drink the 'whatever that awful liquid' is....lol
JO

[Shan1014]

Hi,

So sorry to hear about your CSF leak and all the surgeries you have suffered through. I have not had a leak but noticed you listed Phoenix as possibly where you live. 3 months ago I underwent AN surgery for a massive tumor. My doctors were incredible and throughout the last few months in talking with others, they are often referred to as the best. My ENT specialist was Dr. John Macias and the neuro was Dr. Byron Willis. Both of their offices are located next to Good Sam in Phoenix. The care I received there in ICU for 9 days was also excellent.  Not sure if you live in AZ or not but these guys are really good. Good luck to you.