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Author Topic: Syracuse/Auburn NY area?  (Read 1412 times)

Vtech

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Syracuse/Auburn NY area?
« on: June 03, 2010, 10:57:30 am »
Is there anyone here living in this area that would be willing to talk to me about their experiences with AN?
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Age: 38,  Possible 3.5 cm neuroma found May 2010. waiting on second MRI to conclude either way . "Prey for the dead, but fight like hell for the living." (Mother Jones)

CNY

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Re: Syracuse/Auburn NY area?
« Reply #1 on: June 03, 2010, 11:23:39 am »
I sent you an email message.  But I'd also be interested in a local meeting if there is interest.  Thanks, Greg.
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Translab @House 5/14/09 (2 cm)

lori67

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Re: Syracuse/Auburn NY area?
« Reply #2 on: June 03, 2010, 08:11:33 pm »
I don't live in Syracuse, but I lived in Saratoga Springs for 10 years - and I've been to Syracuse.   :D

I can't offer any advice on local doctors, but if you want someone to talk to regarding general AN stuff, you can call me if you like.  Let me know and I'll PM you my phone number.  Or, if you have the Willing to Talk list from the ANA, I'm on there too - as well as many others you can call.

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Vtech

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Re: Syracuse/Auburn NY area?
« Reply #3 on: June 04, 2010, 04:35:33 am »
Thank you both. I will most likly take you up on the chats after my Dr. appointment on June 11th. I am sure I will have many questons/concerns/worries after that.

Laurie
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Age: 38,  Possible 3.5 cm neuroma found May 2010. waiting on second MRI to conclude either way . "Prey for the dead, but fight like hell for the living." (Mother Jones)

michelle d.

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Re: Syracuse/Auburn NY area?
« Reply #4 on: June 15, 2010, 08:01:44 pm »
HI Laurie...I live in the Rochester, New York area, if that is any help to you??  I'd answer any questions I can...michelle d.
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Acoustic Neuroma on right side--removed Nov. 13th, 2009 @ Strong Hospital, Rochester, NY....Translab.   50 years old
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