Hi Darlene, getting better and trying to get used to the sensory changes. Can finally see computer and type. Not yet navigate around much though. Now I am 2 weeks three days. No CSF leak, just trickle behind nostril for a few days. Spared hospitalization and procedures - didn't move was petrified. If you don't mind me going over them, I have tinnitus that sounds like a white noise machine is on a high volume and strapped to my operated side. I don't seem to hear anything in that ear except for the this (had other tinnitus presurgery). Voices I want to hear sound in the background to the tinnitus which is damn annoying. From what I read here before this is something I can continue to have and there are some things I can try to handle this. My surgeon's associate told me she felt it may go, but it is unknown when.
Balance is problem, can walk with a walker. Feel disequilibrium would describe it best and there is some altered vision such as double vision and movement sensations in some gazes. Gentle tipping like on a boat somewhat whether I move head. Given simple eye exercises for double vision. Can't tell if vertigo or dizziness or balance or vision specifically, just seems not right. Is this wonky? Doctor mentions evaluation at one month with possible vestibular or eye therapy depending on symptoms at that time. Emotions and concentration not normal yet.
Did everyone get contacted about path report by doctor or at follow-up? Since almost always normal presume just normal AN? Is a neuroma exactly the same as schwannoma? Could not find during a search.
I guess next week I should move to post-treatment with my notes on the bottom. Someone help me move? Thanks all. I still read a little here every day, really nice people. Thanks Darlene.
