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Author Topic: Clean MRI - 3 yrs post-op!  (Read 3973 times)

jerseygirl

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Clean MRI - 3 yrs post-op!
« on: July 02, 2010, 11:20:37 am »
Hello everybody,

This Sunday was 3 years post-op and today my MRI results are in - NO TUMOR, NO SCAR TISSUE!!! In other words, it is completely clean. I think I will be having the next one in another 2 years to mark my 5 year post-op anniversary. To say that this is great is an understatement. This AN tried to rule my life  for 22 years and was initially life-threatening. I am still weary of saying "It is all over" but the results are incredibly encouraging and mean that I don't have to think about treatment or monitor its growth. I am so happy I am ready to cry.

This forum has been a lifesaver. I only wish it existed when I had my first AN surgery in 1988. Family and friends just do not understand all of our issues. Only people who had AN can. Thanks everybody who contributes and keeps this forum going!

                      Eve 
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Jim Scott

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Re: Clean MRI - 3 yrs post-op!
« Reply #1 on: July 02, 2010, 12:57:01 pm »
Eve ~

Congratulations on your 'clean' MRI report!  I'm very happy for you and I want to mention that you've been a real asset to the ANA forums,. Your many contributions are much appreciated - and we thank you.  Now, try to put this AN stuff behind you and go enjoy your life!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

cin605

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Re: Clean MRI - 3 yrs post-op!
« Reply #2 on: July 02, 2010, 04:16:10 pm »
Congrats!That is very good news! ;D
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Jackie

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Re: Clean MRI - 3 yrs post-op!
« Reply #3 on: July 02, 2010, 05:07:38 pm »
Hello Eve,

I hope those tears are tears of joy and thankfulness! Congratulations on your clean post-op MRI. Now go and enjoy your tumor-free life! We are so happy for you!!!
Blessings always,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

nteeman

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Re: Clean MRI - 3 yrs post-op!
« Reply #4 on: July 03, 2010, 09:43:14 am »
Eve,

I am very happy to read your good news.

Enjoy!

Neal
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Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

DR

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    • Dennis vs. The Tumor
Re: Clean MRI - 3 yrs post-op!
« Reply #5 on: July 04, 2010, 05:27:30 am »
Eve,

Congratulations, that is great news!

- Dennis
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AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."

lori67

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Re: Clean MRI - 3 yrs post-op!
« Reply #6 on: July 04, 2010, 06:22:15 am »
Eve,

That is absolutely wonderful news!  I can't even imagine how relieved and happy you must be!  You showed that AN who's boss!   ;D

Hope you've been celebrating!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

jerseygirl

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Re: Clean MRI - 3 yrs post-op!
« Reply #7 on: July 04, 2010, 08:16:02 am »
Thanks for all the replies and warm wishes! You bet I have been celebrating! I am practically jumping with joy! I will tell you  - it is much easier to share good news than bad news.


                           Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

leapyrtwins

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Re: Clean MRI - 3 yrs post-op!
« Reply #8 on: July 04, 2010, 09:48:19 am »
Fantastic news! 

Congratulations!!!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Vivian B.

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Re: Clean MRI - 3 yrs post-op!
« Reply #9 on: July 15, 2010, 08:56:18 am »
Hi Eve,

That is definitely great news! I am very happy for you.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Sonja

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Re: Clean MRI - 3 yrs post-op!
« Reply #10 on: July 25, 2010, 07:40:58 am »
Jerseygirl:

Happy to hear the great news. Very happy for you!

Sonja
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Symptoms 2005
AN diagnosed January 2007
Watch & Wait until now
Surgery (Translab) scheduled February 18, 2009 HEI (Dr. House, Dr. Schwartz, Dr. Stefan)
No servicable hearing in affected ear

Mei Mei

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Re: Clean MRI - 3 yrs post-op!
« Reply #11 on: July 25, 2010, 03:41:07 pm »
Happy to hear the great news.   It gives us all something great to look forward to.   You're quite an inspiration!

Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh
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