Almost 2 months post GK

[Vivian B.]

Hi Everyone,

I have not been on for awhile. I am trying to forget about the death of my intruder. So far, I have had nausea after GK, still have a bit of it but slowly going away. I  had some hot flashes during the first 4 weeks. I took the first two weeks off work and tried to rest as much as I could, although I still tire easily. In the past week, I have had some fullness in my ear and I feel like I am having more problems hearing, but I don't know if it is still too soon for these particular side effects or just coincidence. My incisions have almost healed, although the right one still throbs sometimes. It was much bigger than the left for some reason and the neuro. said the needle went through a muscle. Overall, I can't complain. So far I don't regret having the procedure. I am not sure what else to expect in terms of symptoms. Sometimes I am conscious of it, sometimes I am not. I will have a follow up consultation with the GK team on Sep 29/2010 at which time an MRI will be booked. Someone at work shared a personal technique with me today. She said that prior to engaging in something stressful that is scheduled in the future, she marks on her calendar or cell phone when she should start worrying. For example, she told me in my case my appt. is on Sep 29/2010, I can start worrying on or about Sep 25/2010 Until then a clear mind helps the soul. I thought I would try it. Anyway I will keep you posted on the progress of my dying tumor.

Vivian

[Tumbleweed]

Hang in there, Vivian. The road will have some rough patches, but smooth pavement lies not too far ahead! You'll be feeling much better before you know it.

Best wishes,
TW

[nanramone]

Hi Vivian,

It's been 3 months since I had GK, and this last month I've seen great improvement in symptoms that started immediately after GK. I feel very close to normal, but a month ago I was worried. I hope you see similar improvement soon. I can easily remember that just one month ago I was afraid at times, but now, with symptoms subsiding, I don't have that constant daily reminder that something's wrong. I like your friend's idea about scheduled worrying! It's kind of funny.

Hope you have good news at your next MD visit. My first follow up MRI isn't until November...I put it out of my mind until later.

Nancy

[Lizard]

Vivian,
Sounds like you are progressing pretty much as expected, but with many GKer's its hard to know what you will wake up to tomorrow.  Hopefully you begin to have many symptom free days!
Liz

[eab]

Vivian,

Hang in there! I didn't really believe it when I heard that people who had AN's actually got to a point where they didn't think about it every day.  I had my GK a year ago and I am happy to report that I can really put it aside - although I still blame the darn thing when I can't find my keys or forget something obvious.  I wish you have a successful and speedy recovery.

Beth

[acGK2009]

Just read your post and must tell my story from GK done in univ Pitts 1/28/09 all went well for 15 mths when I awoke with first side effect of shuffling and loss of balance which was determined by MRI to be hydrocephalus and corrected  5 mths later with shunt and now find no problems since! However I was not aware that hydrocephalus was a possible side effect and I still have 2.40 cm AN which appears stable. Still believe GK was my best option!  allan :

[Jim Scott]

Hi, Vivian ~

It was good to see you post again.  I trust you'll continue to improve and although there may be a few hurdles along the way, I'm confident that normalcy is not far off for you. 

Jim