Author Topic: Planning appointment!  (Read 3660 times)

inmaine724

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Planning appointment!
« on: November 04, 2010, 08:00:45 pm »
Going to Mass Gen tomorrow for my planning appt.  Halo, CT Scan and beads/markers.  Should be a great time.  ha

Appts are all day, so it's going to be a long 4 hour ride down, long day, and then a long ride back.  Not looking forward to it at all.  But at least we are getting underway!

I'll update more after tomorrow!  Thanks all, for all of your support.  It has really been invaluable.

...Danielle
Happiness grows in direct proportion to your acceptance, and in inverse proportion to your expectations.--Michael J Fox

Kaybo

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Re: Planning appointment!
« Reply #1 on: November 04, 2010, 08:36:39 pm »
GOod luck and drive safe!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

questions?586

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Re: Planning appointment!
« Reply #2 on: November 04, 2010, 10:04:11 pm »
You're on your way!  Keep us posted.  Dodge the raindrops!
AN 1.4 cm x 1.7 cm x 1.0 cm
fair amount of hearing loss right ear
diagnosed 7/29/10

I'm a fun and reasonable RN, now living far from appropriate medical care. Feeling overwhelmed!

lholl36233

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Re: Planning appointment!
« Reply #3 on: November 05, 2010, 03:01:25 am »
Good luck.  We'll be thinking about you today.  It is a long day.  Make sure to bring something to read.  It can be hours between appointments.  Dr. Chapman will show you what the tiny beads look like before he implants them.  You should soon have you date when treatment will start. 

Trust me, a year later I have no regret.  Going to MGH for these treatments was the best thing I've even done for myself.

Laura
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

leapyrtwins

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Re: Planning appointment!
« Reply #4 on: November 05, 2010, 05:57:09 am »
Good luck, Danielle.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Lizard

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Re: Planning appointment!
« Reply #5 on: November 05, 2010, 12:51:20 pm »
By now you should be pretty much done or on your way home, I hope everything went well. 
Cheers to the first step in the treatment process under your belt!
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

cin605

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Re: Planning appointment!
« Reply #6 on: November 05, 2010, 05:10:07 pm »
Hope your appoinments went smooth....and you get to relax and put your feet up,maybe w/ a nice cup of tea or glass of wine when you return home.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

inmaine724

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Re: Planning appointment!
« Reply #7 on: November 05, 2010, 07:43:25 pm »
What a day!  Halo is made, Ct Scan is done, and skull markers are in place.  Dr Chapman was super nice.  It was all just very tiring, but I'm ready to go.  I start on the 17th.  Please pray that the next 6 weeks go by quickly!  I have to go for 3 days AFTER Christmas.  BLAH! 

Thank you guys, for all your support!   :)

...Danielle
Happiness grows in direct proportion to your acceptance, and in inverse proportion to your expectations.--Michael J Fox

lholl36233

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Re: Planning appointment!
« Reply #8 on: November 05, 2010, 08:34:35 pm »
You're on almost the same schedule I was last year.  Looking forward to reading about your first day.
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!