Author Topic: Visit to Cleveland Clinic  (Read 11409 times)

Mei Mei

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Re: Visit to Cleveland Clinic
« Reply #15 on: December 12, 2010, 01:58:07 am »
Oh, Wow,   I forgot about the vacation plans.  Got to close my eyes and start dreaming.

Play therapy is wonderful.  I'm tired of seeing docs all the time.   Glad I'm off the ventilator, got the tube out and O2 off.   When I found out I was on a ventilator, I really got scared!   What a freaky time.   Glad I have an ENT visit scheduled for next week to check out my tongue.   It hurts from when I went unconscious and bit down.  Now I have a purple tongue so I can't get mad at people and stick out my purple tongue.   Also have a psychologist visit coming this week which I will really unload there.   I'm so glad to have all of you and  No, the doctor never apologized.


My 96 year old father is so healthy.  No surgeries, YET!   and no headaches, but just a touch of arthritis in his fingers.  He asks for cream about once a month or less.

Love you all and glad to be home!
Mei Mei    ;D
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Captain Deb

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  • Phearless Phyll and Captain Deb!
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Re: Visit to Cleveland Clinic
« Reply #16 on: December 12, 2010, 06:40:39 pm »
Jeez Mei Mei, what a frickin ordeal!  I guess the lesson here is to get a copy of your surgical report and take it to every doc visit you go to and make him read it in front of you.  I can't believe none of these clowns will give you a full set of Botox injections--they have worked wonders for me--the best relief I have found yet.  My first nerve block worked really well, too, because I think he really got the right spot the first time he did it and may have missed the next two.  The "D" medication you got was probably Depo-medrol.  I always get a list of what they use on me from the doc.
There has got to be a decent pain clinic in your area.  Have you thought about a consult with Dr Ducic at Georgetown?  He does nerve decompression surgery.  Has anyone ever gave you a definitive diagnosis on what is causing your headaches?  Mine is essentially occipital neuralgia/Cervicogenic headache.

You really need a break from all this crap my dear!!

Sending you a big warm hug from an icy mountain,

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Mei Mei

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Re: Visit to Cleveland Clinic
« Reply #17 on: January 20, 2011, 06:14:24 pm »
Just received my Cleveland Clinic records in this afternoon's mail.  I was surprised and angered to read that after I passed out my EKG read that I had tachycardia and a possible Myocardial Infarction (heart attack).  I don't know why they never told this to me.   It's very upsetting.   Why don't they share what's happened to you?   ???
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

moe

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Re: Visit to Cleveland Clinic
« Reply #18 on: January 20, 2011, 09:51:31 pm »
 Why don't they share what's happened to you?   ???

That fear of lawsuit thing! Thank God you are Ok though!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Mei Mei

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Re: Visit to Cleveland Clinic
« Reply #19 on: January 21, 2011, 06:51:49 am »
I'm glad to be here, Moe.   I feel fortunate.  I hope there isn't any scarring on my heart.   They said they were checking enzyme levels every few hours.   Now I understand why.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh