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Author Topic: Start Proton Beam tomorrow!  (Read 3923 times)

inmaine724

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Start Proton Beam tomorrow!
« on: November 16, 2010, 03:05:29 pm »
Start Radiation tomorrow!  ughh!  I'll update every now and then!

Wish me luck!  :-)


...Danielle
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Happiness grows in direct proportion to your acceptance, and in inverse proportion to your expectations.--Michael J Fox

Jim Scott

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Re: Start Proton Beam tomorrow!
« Reply #1 on: November 16, 2010, 03:13:51 pm »
Danielle ~

Thoughts and prayers are with you tomorrow.  We wish you good luck, too.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

CHD63

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Re: Start Proton Beam tomorrow!
« Reply #2 on: November 16, 2010, 03:26:14 pm »
Danielle .....

The apprehension is probably going to be the worst part of it.  You will be OK.

Thoughts and prayers.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

lholl36233

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Re: Start Proton Beam tomorrow!
« Reply #3 on: November 16, 2010, 04:33:40 pm »
Good luck tomorrow.  The worst is already over with your planning appointment.  Those 6 weeks went by quickly for me.

Looking forward to your updates.
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Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

patt

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Re: Start Proton Beam tomorrow!
« Reply #4 on: November 16, 2010, 09:39:33 pm »
Danielle-----
         Good luck to you.   Please keep us posted.  I finished 30 treatments of "FSR" in July 2010 and I am doing well.   I had a repeat MRI three months after  my last treatment and the report was that it had decreased slightly.    I will have another MRI next July.
          My husband and I were just talking about the "New Proton treatment" just tonight.   We are from Minnesota and our paper just had an article that we will be getting one soon.
             Let us know how it goes.   My tumor was 2.7CM  --- how about yours??
             Good luck again ---
                Patt from Minnesota
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Patt  - age 63
Diagnosed - 3/22/2010  -- sudden hearing loss Rt ear
Right ear -- 2.7cm
Left ear -- limited hearing
Will be having "FSR" 
Starting date is June 1st, 2010
30 treatments  --  6 sites
July 12, 2010 -- Completed "FSR" treatments
Oct 2010 - MRI -Slight decrease in size

sgerrard

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Re: Start Proton Beam tomorrow!
« Reply #5 on: November 17, 2010, 12:30:45 am »
One to beam up. Energize!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

elliemae

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Re: Start Proton Beam tomorrow!
« Reply #6 on: November 17, 2010, 02:28:54 pm »
I love Steve's reference!!!

Good luck, Danielle.  Those 6 weeks do go by fast - they did for me. 
And you'll have a new "family" of techs too!  Funny how one bonds with their medical team!

Elaine
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nftwoed

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Re: Start Proton Beam tomorrow!
« Reply #7 on: November 17, 2010, 02:38:25 pm »
... and to think, the rays won't exit the other side of your brain/head, but will stop at the tumor.
   I like Proton Beam for this alone. Other radiation txs have x-rays or gamma rays which pass through the full head.
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free2be

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Re: Start Proton Beam tomorrow!
« Reply #8 on: November 17, 2010, 02:48:29 pm »
Danielle,

Will be thinking and prayer for you for the coming weeks for your treatment. You'll do great!

Relax. Or try to :)

Connie
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Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

inmaine724

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Re: Start Proton Beam tomorrow!
« Reply #9 on: November 18, 2010, 05:41:19 am »
hi all. treatment 1 is officially on the  books! it was extremely uncomfortable,I have to say. I don't like being bolted down, and I did have a headache after, which I think was from the straps being so tight. all in all I'm glad to be started!
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Happiness grows in direct proportion to your acceptance, and in inverse proportion to your expectations.--Michael J Fox

questions?586

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Re: Start Proton Beam tomorrow!
« Reply #10 on: November 18, 2010, 10:47:33 am »
I'm glad you've begun the count down.  Your posts are also helpful to me as I consider proton versus cyberknife. Maybe you need a calendar with a piece of good chocolate for each day!   ;D  I'm thinking of you.
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AN 1.4 cm x 1.7 cm x 1.0 cm
fair amount of hearing loss right ear
diagnosed 7/29/10

I'm a fun and reasonable RN, now living far from appropriate medical care. Feeling overwhelmed!

cin605

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Re: Start Proton Beam tomorrow!
« Reply #11 on: November 19, 2010, 10:55:44 am »
So glad to hear that you have started your treatment plan....Hope all is well.
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old
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