I don't think any forum will live up to my expectation now, after having had the support and information from this one, but I just joined one for people with Addison's Disease.
I'm feeling very frustrated. I know I'm only 7 weeks post CK, but I can't tell what symptoms are from what. I don't feel that I'm getting the answers I need from my current endocrinologist; I don't think they have many Addison's patients since it is so rare. Glancing at the Addison's forum I got some ideas and information that the doctor has not been helpful with. I don't know if we have a handle on my Addison's as much as possible or not.
I have an e-mail out to Dr. Chang to see what his thoughts are on some of my symptoms, but some of it, like fatigue, just runs together with the Addison's and may be from both issues.
I'm so lucky to be such a rare specimen.
Just whining, I guess.
Connie