Hi, Rhonda:
Sorry to hear you're hitting a bit of a rough patch. It's to be expected, though, especially considering the size of your schwannoma. The good news is your symptoms are almost certainly to be temporary.
I remember that for a long time you had no hope of being treated, and you lamented that all you could do was wait to die as your tumor grew larger. As difficult as your side effects may be now, you most certainly would've had them at some point at the same -- and eventually worse -- intensity had you not been treated and your schwannoma continued to grow. But these symptoms are now part of your healing process, not a dying process (except that your tumor is dying)! It's the bitter medicine you must unfortunately swallow in order to get well. But you will get well. You are already on your way to better health. So, yeah, we toastie posties won't try to minimize what you're going through, because we know firsthand how difficult it is. But it helps to remind yourself that these side effects are all on account of a very positive thing.
You'll feel better soon.
We are all rooting for you.
Best wishes,
TW
