Author Topic: Seeing the doctors on Friday to schedule taking out the Titanium Mesh  (Read 12074 times)

Mei Mei

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #15 on: February 27, 2011, 11:51:29 am »
Am in the ER NOW,   Headaches were so bad yesterday  until this morning.   THE GAVE ME I V ddilaudid and a Valium and a  CT S=CAN    .   discussing the possibility of staying and taking out the mesh tomorrow.   WELL SEE.
mm
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

nancyann

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #16 on: February 27, 2011, 01:16:16 pm »
Mei Mei:  So sorry this is still happening to you.  Will put out good thoughts the pain will soon be a thing of the past.
(I can't log onto fb so I don't know what's happening there - I somehow got myself locked out yesterday).
Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

cin605

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #17 on: February 27, 2011, 02:17:38 pm »
 ???
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #18 on: February 27, 2011, 02:59:53 pm »
I just got home a half an hour ago and saw so many typo's on my posting.   That dilaudid with a Valium works wonders!

They said to contact the specialists tomorrow because it's not an emergency surgery but they handled things quite nicely in the ER.   No one's given me a muscle relaxant in this entire year of recuperation.   You can tell how much I needed it because it worked so fast and I'm feelin' sooooo good.

Hope I can get into surgery this week!
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

moe

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #19 on: February 28, 2011, 10:02:42 am »
Mei Mei,
Yep, sometimes you just need those drugs. What a combo, but so glad you found some relief, if temporary. Hoping you can get your medical care this week and safely too ;)
Hang in there,
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Mei Mei

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #20 on: February 28, 2011, 07:57:26 pm »
Thanks, everybody.   The dilaudid in the pill form didn't work at all and I had a killer headache that lasted from 8 pm to 10 a.m.   It was frustrating and I just can't go to the hospital to get an i.v. of dilaudid every time I get a headache.   Something has to be done.   One sugeron said to do both the cutting and the removal of the mesh at the same time.    The other said to cut the nerves first because it is simpler and the removal of the mesh is a complicated surgery.   Lots of decisions to make.   ^-^
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

wwarr

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #21 on: February 28, 2011, 11:39:08 pm »
Mei Mei,

My prayers and thoughts are with you!  I feel so bad for you that you are having to go through this and suffering so much.  I wish you a pain free night.

Best wishes

Wendy
4 mm x 8 mm 12/08
1.4 cm rt. AN middle fossa on 7/23/10
hearing and facial nerve preserved. Grateful for brilliant surgeons Dr. Friedman/ Dr. Schwartz @ HEI in LA, CA.

post op chronic headaches
”Faith in every footstep...let go and let God”

Mei Mei

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #22 on: March 01, 2011, 08:01:26 pm »
Thank you, Wendy for your kind wishes.   I went to a follow up appointment for my sleep study and the doctor was so concerned about the meds that I'm on that she called my nurse practitioner while I was in the office and called my primary care.   She insisted I take a taxi home and get a neighbor to pick up my car.   Will have to get an I.D. card for handicapped car service for my medical appointments which are many every week.  Being loopy is a traffic hazard and I wouldn't want to be a cause of an accident.   Will stop driving as of today until we get this figured out.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Mei Mei

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #23 on: March 23, 2011, 01:08:48 pm »
I saw three neurosurgeons and they all said that the Titanium Mesh has big holes in it and the brain and dura and scar tissue have grown together...that removing it is too precarious now.   I don't want to end up with brain damage.   The plastic surgeon also said this.   The only one that doesn't agree is my ENT doctor.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #24 on: March 24, 2011, 06:44:08 pm »
MeiMeiits just so complicated when the Drs can not agree w/ eachother.Call me soon...HUGS
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Seeing the doctors on Friday to schedule taking out the Titanium Mesh
« Reply #25 on: March 25, 2011, 09:20:07 am »
I know ...  that is why I cancelled the first date on Feb. 16.

I've done so much homework on this and am ready.
Mei Mei

PS   I think I have your two numbers switched and keep calling your home # instead of your cell.   It's good that we both have sprint.
 ;D
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh