Acoustic Neurinoma Diagnosys

[Inna]

Good Day.
It my first topic in this site , so please be gentle & sorry in advance for my english.
Before 4 years I was diagnosted with Acoustic Neurinoma. MRI test found tumor with size 8x16x9 mm.
Sense 2002 I'm tested every year , and it growth a little.
Recently I was tested & it already was 10x19x12 mm.
My question is:
1. What should I do in my case?
2. What kind of treetment technics you may recommend?
3. Who are the specialist person that I can contact?
Some details: I'm a woman 54 years old & live in Israel.

Thanks to you.

[ppearl214]

Shalom Inna and welcome. Your English is fine and I understand everything you say.

Since your tumor is still considered "small" by AN standards, you do have many options. I am not all familiar with what is available but I do know that certain forms of radio-surgery (no, not surgery where doctor cuts, but radiation kills the tumor) available. Then, you can also have operation to remove the tumor as well. I think it is a personal decision of which type you decide that you want.  For me, there are 2 questions to ask yourself.

1.  Do I want the tumor out of my head by operation?
2.  Do I want to try non-invasive procedure to kill it before I try operation?

Both forms of treatment come with risks, so you have to decide which of these 2 questions is how you answer best for you.  Then, we can narrow down what kind of treatment can help.

Let me do a little web research to see what is available in Israel... or are you willing to travel to Europe for treatment?

We are here for you... this site is fantastic support!  We welcome you!

Phyllis (Pincha)

[Battyp]

Hi Inna and welcome!
Sounds like Phyllis has you covered for treatment options. 

Are you having any symtpoms? 

You're english is fine so don't let that stop you from posting!

Hugs, Michelle

[russ]

 Hello Inna!

  That's a small amount of growth in 4 years so you may wish to watch by annual MRI for a bit yet.

  I see this center does irradiation in Israel:

  ISRAEL (LINAC, minimultileaf collimator, FSR)

 Dr. Roberto Spiegelmann, Director, Stereotactic Neurosurgery and Radiosurgery Unit, The Chaim Sheba Medical Center, Tel HaShomer Israel 52621.  Dr. Spiegelmann has been offering radiosurgery for years, and as of January, 1999, he also offers FSR.  His email is spiegel@sheba.health.gov.il ;  his telephone numbers are:

+972 3-530-2486 hospital
+972 3-534-5070 private clinic
+972 3-530-2650 secretary
+972 3-535-4413 fax

  For Gamma Knife radiation: http://www.irsa.org/  ( see: Centers of Excellence )


  Also, for surgery:

  ISRAEL


 Belinson Hospital, Rabin Medical Center, Petach Tikwa, Israel. Dr. Nachman Einan, Deputy Head of Neurosurgery. Ph. 03-9376401/2/6

 Hadassah University Medical Center. Prof. Felix Umansky (Chief of Surgery), may be contacted through their website http://www.hadassah.org.il/english, by phone at +972-2-6777091, or at his email umansky@hadassah.org.il,


  Russ

[Pablo]

Some details: I'm a woman 54 years old & live in Israel.

Hi Inna,
I live in Israel too. I have a 2.5 cm AN and after doing months of reasearch for treatment options I decided to have my FSR in the US. The main reason is that the doctor that Russ refers to, along with another doctor at the Hadassa do not have solid experience with FSR treatment. Even though they are very reluctant to provide any experience information (wonder why...?), they indicate that the treatment itself is available for no more than 3 or 4 years. Also, when I consulted in the Hadassa and had my first attempt to book some tentative dates for treatment they were not even sure how many dosages they would give me (actually they changed it twice).
Since I didn't want to become a statistical sample in their on going data collection process for treatment validation I decided to go for FSR in the states. This particular doctor has hundreds of AN cases treated with Hypo FSR with a very high success rate. Of course this doesn't mean that success is secure for everyone but from the scientific standpoint, the treatment system and methodology has been proved for more than 12 years.
If you need further information, let me know.

[Inna]

ppearl214, battyprincess, Russ, Pablo, thank you all for your responses.
I am very appreciate your will to help.

I must to consider suggested options & will post later.

Thanks again.