Author Topic: Hydrocephalus - a beginners guide ?  (Read 3874 times)

tony

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Hydrocephalus - a beginners guide ?
« on: October 14, 2006, 10:14:21 am »

Happy subject for a saturday afternoon - but one to keep in mind perhaps

The human brain has a mechanism which involves fluid (CSF) that is produced in  the brain, and then flows down through the base of the skull and is then re absorbed back into the body. This system is meant to be there, and where it does not function there are problems.
It is the case that sometimes an AN can cause a blockage in the passage of this fluid
 and this can cause pressure to build up. It is usually associated with the larger AN`s, 2.5cms and bigger. It is quite rare even in the larger cases, and very, very, rarely smaller tumours cause problems.
Sometimes a smaller Tumour is linked to excessive fluid production,
or a thickening of the fluid – which still causes pressure issues.
Finally, of course, Hydro can exist without an AN cause.

Symptoms -The pressure increase causes many effects but these are very gradual which can make diagnosis quite difficult – most cases it will take an MRI to confirm one-way all the other.
Most of the brain is soft tissue that can be compressed by this pressure increase – in this situation certain functions may be reduced
- headaches and or feeling sick a lot + maybe poor balance.
- In my case I lost my sense of smell, but other symptoms are possible
and no two cases are ever quite identical
As the condition progresses the patient will move from feeling slightly nauseous most of the time – to being VERY sick MOST of the time.
One patient on the old list (Mona Lisa?) actually collapsed and was only found when the police broke into her flat.
Other typical symptoms include headaches and balance issues
-so sometimes hard to tell from the general AN situation.
 The whole process can take months to have any effect
- though the sudden change from shunt failure is measured in hours.
In most cases once the condition is treated things return to normal.

Danger- There is however one nasty to be aware of – under certain conditions the increased pressure creates immense strain on the optic nerves. This typically causes flickering or blurring vision and sometimes temporary grey outs or white outs – centre vision blindness for 3-5 seconds.  (And in both eyes).
This is a dangerous condition and needs hospitalisation asap. If it is treated soon enough then no long-term damage occurs – if left too long then it can be permanent.
This condition is called “Papilledema� – it is very rare, but a good doctor can spot it by looking into the back in the eyes at the nerve mechanism.
How to fix it – most cases of can be fixed by placing a small tube in the skull and running it to the stomach – procedure is called a shunt.
As AN ops go it is quite minor – and you might be home in two or three days.
Recovery is good and most things return to normal in a few weeks.
Rarely (4-5%) the shunt fails – in that it gets blocked or leaks in some way
Then the procedure has to be repeated.
Overall prognosis is quite good and the average life of a shunt is around 10 years – though in most cases the tumour is removed before this time and the source of the problem will have gone.

Conclusion – Hydrocephalus is hard to diagnose for a professional, it is not
A “Herbal Tea� of “Positive Thinking� type of fix. Owing to the sight danger
it is always best to get it checked by a specialist – better safe than sorry.
In most cases the shunt solves the problem, and no long term ill effects remain.
Best Regards
Tony

Derek

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Re: Hydrocephalus - a beginners guide ?
« Reply #1 on: October 14, 2006, 12:27:10 pm »
Hi there Tony...

Many thanks for your very informative post. Being subject of 'wait and watch' for almost 5 years now I have to admit that, whilst having read many posts appertaining to hydrocephalus, I have not really acknowledged the potential seriousness of the condition until reading your 'beginners guide' Am I correct in now assuming that this condition can in fact affect anyone diagnosed with the AN condition irrespective that they have NOT had any form of microsurgery or radiosurgery / radiotherapy?

Regards
Derek
Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

Joef

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Re: Hydrocephalus - a beginners guide ?
« Reply #2 on: October 14, 2006, 01:50:09 pm »

Crazycat , did say the shunt had a life span? .. I always thought they were in there forever!

I bet 100's of years ago, before they could operate for AN's or even understood the issues, this is what killed people, the blockage of fluid, not the AN itself ..
4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

tony

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Re: Hydrocephalus - a beginners guide ?
« Reply #3 on: October 14, 2006, 02:46:12 pm »
So Two answers - yes Hydro can exist outside of an AN (at all)
basically a head trauma can cause it and certain infections/diseases
can lead to it - some of these can be treated by drug therapy
Its a different type more associated with senior citizens
Its the AN type cause that usually leads to a shunt
It CAN and DOES  exist pre-sugery - its the sheer size that causes
the blockage (usually on or near 4th ventricle etc)
  - sometimes exists post treatment (post radiation swelling could cause a blockage)
The service life of a shunt  is variable - 10 yrs is average
But if you had a 4.0cms tumour causing the hydro
you probably would not wait 10 yrs to get it fixed
 (it would have surely got you by then )
- most cases the AN is removed long before the shunt
is at the end of its life
Note Hydo can be fatal - very rarely so in western counties these days
but untreated, the results can be quite final (involving farm purchase)
Again hard to spot - until real trouble occurrs
So if in any doubt - Get it Checked
Better be wrong 99 times out of 100
- than miss the 1% who are in trouble
Best regards
Tony

oksandra

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Re: Hydrocephalus - a beginners guide ?
« Reply #4 on: February 09, 2011, 02:52:11 pm »
I know this post is old, but thanks for the information.
Sandra

Crazycat

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Re: Hydrocephalus - a beginners guide ?
« Reply #5 on: February 12, 2011, 01:50:41 pm »
Just saw this. I'm not sure about this but I believe that I may be one of the comparatively few around here that had to have a shunt installed one month before tumor resection/debulking. And yes, it is in there for life. I'm not even sure if it is still operational.

I'm here for consultation and/or commiseration if need be.....
5cm x 5cm left-side A.N. partially removed via Middle Fossa 9/21/2005 @ Mass General. 
Compounded by hydrocephalus. Shunt installed 8/10/2005.
Dr. Fred Barker - Neurosurgeon and Dr. Michael McKenna - Neurotologist.