Author Topic: 3yrs 9mnths W&W now Translab 17/5  (Read 5469 times)

kimbo

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3yrs 9mnths W&W now Translab 17/5
« on: April 13, 2011, 04:40:49 pm »
Hi

After 3 yrs & 9 months in W&W I am now scheduled for surgery on the 17th May to have Translab as my balance has deteriorated significantly in the past 3 weeks.  I was very comfortable in W&W but now its a reality check; I've even had a small cry.  I will post after surgery and let you know how it goes but I am comforted that I understand the journey before me because of all the AN members generously sharing their stories; thank you.

Regards

Kimbo   :o

Diagn 8/8/08 AN right 13mm x 9mm
mod/severe hearing loss & tinnitus
Translab surgery 05/17/2011
SSD & CSF leak x 4
Aussie

CHD63

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #1 on: April 13, 2011, 07:50:07 pm »
Kimbo .....

A major step for you after waiting and watching for so long.  In a way, I am in the same boat as I was watching an "area of enhancement" that was evident on the first post-op MRI from surgery 3 years 2 months ago.  When my symptoms increased and the MRI showed growth, I knew waiting time was over.  I'm scheduled for translab on May 11th ..... and yes, it did suddenly create a reality check.  Be sure to let us know how the waiting time goes ..... as well as posting after surgery.  It helps others coming along with us on this journey.

Everything is pretty much in order for me ..... except for cleaning out some things that have needed to be cleaned out for a long time.  Now I just have this "nesting" reflex kicking in ..... better than sitting around thinking too much, I say.  What about you?

Many thoughts and prayers.  Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

kimbo

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #2 on: April 14, 2011, 03:59:05 am »
Thanks Clarice for your well wishes and I have thoughts and prayers for you. 

You have had a difficult journey and to go through it all again you must be a strong woman.  I am still working full time and will take 1 week recreation leave prior to the surgery date to do my nesting thing.  I really would like things to be sorted out at home so I can come home without concern and give myself the time i will need to recover.  I am just getting my head around the idea of what to take to hospital, arranging accommodation for my family (hospital is 4 1/2 hours away) and I'm going to treat myself to a massage the week before. 

Look after yourself. 

Kimbo
Diagn 8/8/08 AN right 13mm x 9mm
mod/severe hearing loss & tinnitus
Translab surgery 05/17/2011
SSD & CSF leak x 4
Aussie

kenneth_k

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #3 on: April 14, 2011, 04:27:50 am »
Hi Kimbo.

Sending lots of positive thoughts and wishes for good luck. Taking a week off from work before surgery is probably one of the best things you can do ;)

Best regards, Kenneth
« Last Edit: April 14, 2011, 10:26:25 am by kenneth_k »

Mickey

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #4 on: April 14, 2011, 07:40:46 am »
Wishing you both the best and for a speedy recovery. My prayers are with you, Mickey

Rivergirl

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #5 on: April 16, 2011, 03:54:53 pm »
I am right behind you Kimbo mine being the end of May or first of June.  I may take some R&R before as well, get the house spotless (as it can be with a 7 month old wild puppy) and my drawers in order, pay the bills etc..  So I will be thinking of you, post as soon as you can to let us know how you are......Best of luck
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

kimbo

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #6 on: April 16, 2011, 07:07:11 pm »
Thanks Rivergirl - I wish you the best of luck, I having been reading your past posts and you have done extremely well to put up with the balance issues for as long as you have.  Other than hearing loss, tinnitus and hypersensitive hearing (worst symptom) I have had a pretty good run but now with the balance issues and a walking stick (ugh) its not so good.  Its funny how we feel we need to nest when major stuff is pending, I remember loading the dishwasher and doing some washing in the middle on the night when I was in labour with my second child and unknowns to us I gave birth unexpectedly on the loungeroom floor 1 hour later.

Take care and treat yourself to some me time.

Kimbo :)
Diagn 8/8/08 AN right 13mm x 9mm
mod/severe hearing loss & tinnitus
Translab surgery 05/17/2011
SSD & CSF leak x 4
Aussie

Sonja

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #7 on: April 16, 2011, 11:46:37 pm »
Kimbo:

Just want to wish you well. I hope you have a speedy recovery.

Sonja
Symptoms 2005
AN diagnosed January 2007
Watch & Wait until now
Surgery (Translab) scheduled February 18, 2009 HEI (Dr. House, Dr. Schwartz, Dr. Stefan)
No servicable hearing in affected ear

Rivergirl

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #8 on: May 14, 2011, 06:40:51 pm »
Kimbo, hope your surgery goes as easy and quickly as your labor!  :)
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

CHD63

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #9 on: May 17, 2011, 07:14:35 am »
Kimbo.

Here it is May 17th and wondering if you are in surgery or it's all over. In either event, I sure hope you are doing well. Prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

opp2

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #10 on: May 17, 2011, 08:35:49 am »
Thinking of you, wishing you sweet dreams as your AN is banished.
Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

deheisel11

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Re: 3yrs 9mnths W&W now Translab 17/5
« Reply #11 on: May 17, 2011, 09:32:09 am »
Kimbo,
Best wishes for a speedy recovery.  Welcome to the other side.
translab surgery of 2.6cm neuroma, right side, by Dr. Welling at Ohio State, 6-18-10.  BAHA base placed on same day.  Facial paralysis. Gold weight 7-14-10.