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Author Topic: finding a doctor  (Read 2312 times)

icscfhn

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finding a doctor
« on: June 22, 2024, 02:26:29 pm »
I have had an MRI for MS and a 2.5 cm AN was found. My neurologist referred me to a local ENT who cannot see me for another month. The local ENTs do not treat AN. Should I look for a consult with someone who specializes in AN or wait and go to the local ENT first?
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UkulelesAreAwesome

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Re: finding a doctor
« Reply #1 on: June 22, 2024, 07:14:03 pm »
My ENT referred me to a neurosurgeon and neurotologist. I also saw a gamma knife radiation oncologist. I chose gamma knife in 2022. I had a bit of a wait also. I was diagnosed with the AN in April 2022. I saw a neurosurgeon in June 2022. I did not want surgery so I was referred to a different neurosurgeon and gamma knife radiation oncologist in July 2022. The waiting period really felt like forever.
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DanFouratt

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Re: finding a doctor
« Reply #2 on: June 23, 2024, 03:16:08 pm »
Dear icscfhn,

I am not a doctor but my advice is find someone who is familiar with AN. In the library there is a presentation by the San Diego team about using high volume operation for surgery.  I did not have surgery but had a high volume Doctor ready. 

Good Luck on your Journey,

Dan
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Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

DanFouratt

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Re: finding a doctor
« Reply #3 on: June 23, 2024, 03:19:29 pm »
The presentation was 3/4/24 by UCSD, worth the time.

Dan
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Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

borewvas

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    • snow rider 3d
Re: finding a doctor
« Reply #4 on: September 18, 2024, 07:49:33 pm »
Quote
I have had an MRI for MS and a 2.5 cm AN was found. My neurologist referred me to a local ENT who cannot see me for another month. The local ENTs do not treat AN. Should I look for a consult with someone who specializes in AN or wait and go to the local ENT first?
Is the condition getting better now? I think you should proactively seek out a doctor for a consultation and a thorough examination before making a decision. Don't wait passively. Hope you get well soon.
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