Thanks, long story short, when I was first diagnosed I was sent to a neurologist, he said I needed a neurosurgeon, sent me to one, he said gamma was my best bet as my facial nerve is involved, gamma knife doctor did great, but follow up with this doctor was a nightmare, in aug 2011 my family doctor sent me back to original neurologist because of issues I was having and could never get an answer from surgeon who did gk, original neurologist has always felt it should have come out, so he sent me to an ENT who specializes in this type of tumor, he said if this tumor would have been in his head or I had been his patient, it would have come out, though he understood why they took the route they did. In mean time he told me to keep my appt w/gk dr. My husband & I took of work went to the appt, was told they had changed it to 3 wks later and never informed me...so I went to the appt 3 weeks later and they had changed the hospital where the appt was, well I made it to that hospital on time and was put in a room pretty quickly, 1st person that came into the room was on the computer looking at my charts and said, sooooo you came in thru the E-room, I said I was here for follow up after gk, next person who came into the room looked at my charts, came over to me and pointed at the upper left side of my head (i have right side an) & said you have a menginoma, I was upset at this point and told her what my issue was, she said dr will be in soon, I sat there w/my daughter & 3 yr old granddaughter for 1 1/2 hrs, the second woman came back in and said, doctor said everything looks good see you in 6 months, I never laid eyes on him...but I'm sure my insurance paid for a specialist appt. I was furious, I refuse to go back and am dealing w/ENT...we love him, he pulls up my mri and shows us what he is talking about and talks to me, not over my head.
guess it is not such a short story, but it is how I came to change doctors.
