Here is what I posted on the Good News thread:
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ANA Discussion Forum » General Category » Hearing Issues » GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
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Author Topic: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!! (Read 24873 times)
Arasha
Full Member
Posts: 134
El camino es largo y dificil pero no imposible.
Re: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
« Reply #330 on: February 13, 2012, 05:16:54 PM »
Quote
Quote from: mandy721 on February 07, 2012, 09:06:44 AM
I read through the thread and saw that you last posted about your SoundBite in December. Any updates since then? I am hoping to get Ken interested.
Miranda
Hi Miranda,
My SoundBite is working great.! Now I am entirely acustomed to it. I don't want to go out of my home without the device, even when I am at home I wear it.
In one of my previous posts I mentioned that a little plastic part from the microphone (BTE) was continuously breaking. Well... good news! I got an email from Sonitus regarding that problem, here it is:
" We have already began making new microphones with different material.
They should be ready in a few weeks and all offices will have the new
ones then."
All best,
Gloria
« Last Edit: February 13, 2012, 05:27:22 PM by Arasha »
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Left side AN 2.5x1.8 removed on 10/17/2007 endosc. by Dr.Shahinian (retrosig) at SBI, LA,Ca. Facial phalsys (almost back). Balance issues. Tinnitus. MRI 8 months later showed AN was resected completelly.TransEar 11/2008. Clinical trial for SoundBite 11/2009. SoundBite user.I have the best family.
Arasha
Full Member
Posts: 134
El camino es largo y dificil pero no imposible.
Re: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
« Reply #331 on: February 13, 2012, 05:55:32 PM »
Quote
Hi everyone,
A new SoundBite user sent me a message regarding the feedback issues while wearing the SoundBite. I thought it would be helpful to share my comments with you guys.
I remember the day when I got fitted the SoundBite, after the consultation I went to my car and I turned on the radio to find out how comfortable it was to hold a conversation with my husband while the radio was on. The first time I opened my mouth to say something I had a loud feedback, actually I couldn't hold a conversation because the feedback was so annoying, I immediately went back to the office (I was at the parking lot) and I explained the audiologist about this issue. She took the BTE and programed the volume of the microphone a little lower (it took abt 2 minutes). After that I have never experienced feedback again.
I would recommend to the new SoundBite users to do this test before leaving the doctor's office because the audiologist told me that other users returned to her office for the same reason. If you don't have someone inside the car to talk to, you can turn on the radio and try to sing while the radio is on, you should not have to experience feedback.
I hope this helps.
All best,
Gloria
« Last Edit: February 13, 2012, 06:01:08 PM by Arasha »
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Left side AN 2.5x1.8 removed on 10/17/2007 endosc. by Dr.Shahinian (retrosig) at SBI, LA,Ca. Facial phalsys (almost back). Balance issues. Tinnitus. MRI 8 months later showed AN was resected completelly.TransEar 11/2008. Clinical trial for SoundBite 11/2009. SoundBite user.I have the best family.
Smithair
New Member
Posts: 8
Re: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
« Reply #332 on: February 16, 2012, 09:45:30 PM »
Quote
I had the same experience.
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3 cm AN. Translab Feb 2011 House Clinic. Brackman. SSD. Ongoing balance issues Soundbite Feb 2012 Private pilot returned to flying Jan 2012
Arasha
Full Member
Posts: 134
El camino es largo y dificil pero no imposible.
Re: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
« Reply #333 on: February 17, 2012, 12:18:27 AM »
Quote
Quote from: Smithair on February 16, 2012, 09:45:30 PM
I had the same experience.
Becky,
Congratulations for your "new friend", the SoundBite. Is how I call to my device Did you get fixed the feedback?
All best,
Gloria
« Last Edit: February 17, 2012, 12:20:58 AM by Arasha »
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Left side AN 2.5x1.8 removed on 10/17/2007 endosc. by Dr.Shahinian (retrosig) at SBI, LA,Ca. Facial phalsys (almost back). Balance issues. Tinnitus. MRI 8 months later showed AN was resected completelly.TransEar 11/2008. Clinical trial for SoundBite 11/2009. SoundBite user.I have the best family.
Smithair
New Member
Posts: 8
Re: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
« Reply #334 on: February 17, 2012, 11:11:26 PM »
Quote
Yes. Technition kept adjusting and now no problem. Today was my 2 nd day and only one time did I hear a feedback as I turned my head sharply. I absolutely love this device. Driving in the car listening to music, laying on the couch watching tv on my good ear, i even can hear phone conversation on the deaf side although not as clear as normal, i can understand I can't believe the quality of life it has restored! It is my friend indeed.
Becky
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3 cm AN. Translab Feb 2011 House Clinic. Brackman. SSD. Ongoing balance issues Soundbite Feb 2012 Private pilot returned to flying Jan 2012
Arasha
Full Member
Posts: 134
El camino es largo y dificil pero no imposible.
Re: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
« Reply #335 on: February 21, 2012, 07:01:09 PM »
Quote
Hi Everyone,
I just watched a good video report on the SoundBite in San Antonio-Texas. Here is the link:
http://www.kens5.com/news/Soundbite-uses-vibrations-through-the-teeth-to-help-the-hearing-impaired-139445003.htmlAll best,
Gloria
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Left side AN 2.5x1.8 removed on 10/17/2007 endosc. by Dr.Shahinian (retrosig) at SBI, LA,Ca. Facial phalsys (almost back). Balance issues. Tinnitus. MRI 8 months later showed AN was resected completelly.TransEar 11/2008. Clinical trial for SoundBite 11/2009. SoundBite user.I have the best family.
Mei Mei
Hero Member
Posts: 1056
Re: GOOD NEWS...NEW INVENTION FOR SSD... Sounds good for us!!!!
« Reply #336 on: February 21, 2012, 11:52:52 PM »
QuoteModifyRemove
In my former life, I was involved in Clinical Trials and Pilot Studies. Several of the Clilnical Trials were halted after the next morning when it was announced that a researcher put out statistics from Italy that the drug or device was proved helpful or hurtful to the patients all over the United States that this drug or device was either effective or not. It is unethical in medical practice to continue a Pilot Study or Clinical Trial at the same time as selling it to the market. UNETHICAL. We always halted the Clinical Trial or Pilot Study when the evidence showed that the device or drug were shown effective or ineffective. I will not share with you the drug or device because that is not part of the question. What is part of the question is that When I went to GW to get fitted with the Sonitus Sound Bite, I was given a form to sign saying that they would work one year on getting my health insurance company to pay $7000 device for one ear and after one year, they would start working out a nice arrangement with me to bill me the $7,000. That's when I pulled back my pen and called my insurance company and the nurse said NO NO NO don't proceed until everything has been pre approved.
Then besides my being part of a Pilot Study, I found out that Sonitus was holding Clinical Trials throughout the US for their device and at the same time asking me to be responsible for $7,000 should insurance not pay. I know my insurance will not pay. The Doc who happened to be Dr. Monfared formerly of Stanford and now of GW said that he does not do pre-authorizations. What was I to do. I always pre-authorize everything. I was doubly upset that Arasha who started this post said that she was getting the Sound Bite for Free because she was part of the original Clinincal Trial. So they are handing out free devices to people that post on this Forum and to people on the Clinical Trial but for people who live in places like Washington, DC, they are asked to sign a paper that they will pay $7000 if their insurance doesn't pay. So, the bottom line is that some people are getting this device for free and others are being charged $7000 for the same piece of Beta stage device. When I realized that, I stopped communicating with these people that do not follow portico;s of ethical medical professionals.
I will never go to Sonitus in spite of the fact that Cleveland Clinic has put them in the number one spot of all devices for 2010. They are just not following the ethical protocol that I was trained under and find the best way to go considering the people of the United States and beyond who are thinking of getting this Beta Stage device. I am telling you if you do not get this for free, then back down and wait until they have a better product that you are ready and willing to pay for. Don't bite now. They are not ready for market if they are still running Pilot Studies and Clinical Trials. Please believe me that I know what I am talking about.
I myself am going with Dr. S in Johnson City, Tenn because he was willing to get on the phone and explain to my insurance company how I needed the TransEar. He was the inventor of the TransEar and willing to get on the phone and encourage me to come down to Johnson City Tenn and also talk with United Healthcare about my hearing disorder due to the ACOUSTIC Neuroma. I cannot forget Dr. Schumacher's earnest interest in my situation. Sonitus did not do that for me because they are smack in the middle of Pilot Studies and Clinical Trials. Please believe me, they are not ready for the market. You all should be angry.
Sincerely,
Mei Mei
