Author Topic: Renaming your AN tumor----find a fitting name special GK/CK edition  (Read 4470 times)

MDemisay

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Hi everyone,

I thought I would inspire those of you who are going along with some form of radiation treatment!

Those who have been following me since February know that I have been trying to minimize my AN by taking control of it conceptually by calling it "Irv" my mantra became Kill "Irv" I completed my mission along with the help of my Neurosurgeon Dr.Sisti and his bombardeer Dr. Isaacson at NY Presbyterian Hospital on Monday June 11.

I would now like to rename it.................wait...."Dead Irv"



Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

MDemisay

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Re: Renaming your AN tumor----find a fitting name special GK/CK edition
« Reply #1 on: June 19, 2012, 07:16:07 pm »
ANgels,

Do you think this is too cruel or just a little nutty? In 2004, I had a large AN tumor that I named "Irving" which I was terrified getting another brain operation, since I had already had one in 1974, anyway, what I thought was the final solution I had the tumor debulked at the time to "Ir" and then 8 years later it grew back "Irv" I called it.

Now that it I had the Gamma Knife radiation on June 11 giving it 12GY. I'd like to rename it to "Dead Irv"

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

Archer

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Re: Renaming your AN tumor----find a fitting name special GK/CK edition
« Reply #2 on: June 20, 2012, 07:25:27 am »
RIP Ir.  Never to return!

Chances3

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Re: Renaming your AN tumor----find a fitting name special GK/CK edition
« Reply #3 on: June 20, 2012, 11:10:05 am »
Hey Mike,

You've been through a lot, but it hasn't affected your sense of humor - good for you.

Good Bye Irv.

MDemisay

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Re: Renaming your AN tumor----find a fitting name special GK/CK edition
« Reply #4 on: June 20, 2012, 12:21:02 pm »
Dear Archer and Chances3,

Land values in my brain have risen over the years with different procedures, LOL! As the tumor begins to swell and then to shrink, I think that I eventually will have more room for other thoughts. I think that humor was the most efficient way of dealing with the AN. After all, I tried being depressed in 2004. That failed miserably! Dealing constructively with it helped me to maintain a perspective on it.

Mental clarity was the key to its eventual defeat. I hope that one day we know the cause of these buggers. For now it remains a mystery, I know it seems as if we have found the cause (dental x rays and possibly cell phone use) but I think that there may be environmental factors tied to growth like the consumption of certain fat rich foods and additives that we may be overlooking.

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

It is what it is

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Re: Renaming your AN tumor----find a fitting name special GK/CK edition
« Reply #5 on: June 22, 2012, 06:36:54 am »
Has DEAD IRV been silenced?  Any side effects since your latest treatment?

Karen F
.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

MDemisay

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Re: Renaming your AN tumor----find a fitting name special GK/CK edition
« Reply #6 on: June 29, 2012, 03:22:09 pm »
Dear It Is What It Is,

Dead IRV has been silent since 11:30 am on June 11th. Not a tremor or a peep out of the creep! ;D ;D ;D

 No facial ticks to speak of either but once I did have a whirring sound that woke me out of a dead sleep at 3:00 am the other morning in my AN ear (left). Dr. Sisti said that 99% of his patients did not experience any regrowth in 10 to 15 years. Pretty good odds huh?

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

It is what it is

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Re: Renaming your AN tumor----find a fitting name special GK/CK edition
« Reply #7 on: June 29, 2012, 08:50:05 pm »
Hurray!!!!!!    :)
.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.