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Author Topic: Radio Surgery  (Read 4267 times)

grammyslim

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Radio Surgery
« on: May 26, 2012, 09:20:26 am »
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1.4 cm diagnosed 01/12
significant hearing loss rt side
total balance loss rt side - AN side -
left side already compensated (who knew)
Radiation completed May 2012 - all systems are GO -- so happy I chose radiation near home.

MDemisay

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  • Forever Thankful for Supportive ANA Friends!
Re: Radio Surgery
« Reply #1 on: May 26, 2012, 04:07:27 pm »
Good luck! I'll add you to my prayer list on Monday! God is with you!

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

james e

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  • 72 years, 1.7cm, trans lab Mar 2010, BAHA 5
Re: Radio Surgery
« Reply #2 on: May 29, 2012, 11:41:56 am »
Thinking of you today!

James
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LizAN

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Re: Radio Surgery
« Reply #3 on: May 29, 2012, 02:46:00 pm »
grammyslim,

Please let us know how it went.  We are all pulling for you!

Liz
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8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

JWW

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Re: Radio Surgery
« Reply #4 on: May 29, 2012, 04:34:55 pm »
Great article! I have been thinking about you all day, yes please give us updates when you feel like it. Speedy recovery.

JW
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grammyslim

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Re: Radio Surgery
« Reply #5 on: May 30, 2012, 06:54:58 pm »
Thanks for thoughts and prayers.
Everything went well  it was a long day waiting for the treatment plan to be finalized.  I slept a lot -
had headache while waiting (probably cause by lack of coffee and food) given meds for pain
also had headache after frame removal - given pain meds - and some to take home which I only used once last night
slept most of today - starting to feel like myself this evening - hope to be out and about on my own by the weekend
Dr. Teh said everything went well - very nice group of folks working in this area at Methodist - very attentive and caring.  Happy with my decision to stay close to home.

Logged
1.4 cm diagnosed 01/12
significant hearing loss rt side
total balance loss rt side - AN side -
left side already compensated (who knew)
Radiation completed May 2012 - all systems are GO -- so happy I chose radiation near home.

LizAN

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  • Posts: 354
Re: Radio Surgery
« Reply #6 on: May 30, 2012, 09:16:00 pm »
Awesome news, grammyslim!  Thanks for the update, and keep us posted.

Liz
Logged
8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

Jim Scott

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Re: Radio Surgery
« Reply #7 on: May 31, 2012, 12:53:20 pm »
Congratulations!  I'm pleased to learn that the procedure went well and that you're getting back to normal.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

grammyslim

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Re: Radio Surgery
« Reply #8 on: August 03, 2012, 01:29:58 pm »
OK - so there is life after radio surgery.  Understand that all our treatments are different and our responses to out treatments are different.  BUT . . .
One month out - I was riding roller coasters, and walking the historical district of Philadelphia.  Also walked Williamsburg.

 I had some ringing in the ear about 3 weeks post - that's gone.  Had some numbness of the mouth like just being at the dentist (gone).  I am rocking and rolling along even better than before as a matter of fact it seems like I have more energy during the day.  Still get tired in the late evening but not sure if it's related.

Just saying hang in there - smile - life is good.
Logged
1.4 cm diagnosed 01/12
significant hearing loss rt side
total balance loss rt side - AN side -
left side already compensated (who knew)
Radiation completed May 2012 - all systems are GO -- so happy I chose radiation near home.

MDemisay

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  • Forever Thankful for Supportive ANA Friends!
Re: Radio Surgery
« Reply #9 on: August 03, 2012, 01:51:02 pm »
Grammyslim,


Bravo! Glad to hear it! I went in for Gamma Knife just a half a month after you. Have had some intermittent stress like headaches but nothing worse. I like your news, keep going!

Mike

Logged
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!
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